IMMUCURA

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I  am 89 years old, reasonably fit and mentally aware.  

I live on my own by choice but have access to my children, grandchildren and great grandchildren.

I enjoy variious pastimes and go out for drinks at local bars where I meet friends. I also go to U3A meetings.

I have had bladder cancer since 2013 when I had BCG treatment for non invasive cancer, and annual checks since.  

Last year a small growth was detected and removed by the diathermy when I had a flexible cystoscopy.  

Unfortunately the person performing the cystoscopy did not take a sample for diagnosis and neither did he reduce

the time for the next visit, one year.

At the time of my next visit I had developed a muscle invasive growth for which radical radio therapy has been recommended.

Having read the details and paid for a Consultants professional opinion I see no alternative except dindritic cell therapy .Not available in the uk privately nor with the NHS.  

The cost estimates go from £20,000 to £60,000 but I cannot find anything about the Company that appears to be the only one offering treatment except their own descriptions and records of treatments.

does anyone had treatment from the company, IMMUCURA, if so how successful was it

regards

  • Hi  and welcome to the group. We know this company has come up on here before regarding dendritic cell treatment, but no one has come back with any answers. According to my oncologist there has been no factual evidence regarding this treatment. The Mac nurse recently replied to the same question saying there are no clinical trials ongoing in this country. The cost is high so it would be wise to do a lot of research regarding this. Are there ay reasons you would not go with radiotherapy or cystectomy with the NHS? I went the radiotherapy route and many here have had removal with good results. Best wishes.

    Best wishes to All,   rily.

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  • Hi discus, 

    Welcome to the group. Unfortunately I can't answer your question as I've never heard of DCT or Immucura before.

    I did have a quick read on their website, and I'm still not really any wiser. However it did sound very encouraging.

    I'm not sure if it's possible to read up on any professional medical journals, but as you mentioned it isn't available in the UK.

    It has definitely caught my interest, but alas I can't afford to take the punt, even though the company I work for has corporate health insurance.

    I have a consultation soon with my surgeon and might mention it.

    I wish you all the best and please do keep us updated if you do find what you're looking for.

    Kindest regards