Bladder cancer

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I am new here and there seems to be a lot of useful info from people

I was diagnosed with bladder cancer in Oct 2021.  I’ve had TURB and BCG.  The last session of BCG caused a major bladder infection that my GP said was outside their experience and referred me back to the surgeon.  He prescribed  different antibiotics and tablets to reduce the frequency I needed the toilet, was every 20min but now is OK.  A turb and later a CT scan has now shown that the cancer has now penetrated the bladder wall although it now seems clear inside the bladder (G3pT3 N0M0).  I’ve had various tests that have shown that my artificial heart valve and by pass surgery is fine and my heart is considered strong enough for major surgery if required.  I’ve now got to see the surgeon to decide the way ahead. I do not want a stoma but radical radiotherapy + chemo is not very inviting either.  Any thoughts?

  • Hi  and welcome to this supportive and friendly group. You will have a better idea of which way to go when you see your consultant. I was T3/G3 and went the chemoradiotherapy route. It was a long process but I tolerated it ok and still here years later. I am sure others will be along to share experiences of bladder removal. Best wishes.

    Best wishes to All,   rily.

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  • Hi Bill.s,Welcome to the group.Hopefully when you see the surgeon you will get the opportunity to discuss all the options.I had a cystectomy in 2019 and  have a stoma.You will come to the decision that suits you best.I took a notebook in when I saw the surgeon as I had a few questions.My sister came with me and also asked questions,it’s good to have an extra pair of ears if possible.There is plenty of advice and support here.Best wishes Jane 

  • It's so difficult when you have to choose between two unpleasant alternatives (always bearing in mind the option of doing nothing). Worth writing down what you see as the pros & cons of each option, and verify these with the consultant, in case you have a misunderstanding of what is involved. Then ask about risks & benefits, so you can weigh all these up. You will find that you start leaning towards one or the other as the more appropriate choice for you. Best wishes.

  • Thank you all for your replies and the useful advice. Because I’m almost deaf I always make lists as a way to cope but a very useful reminder, thanks. It also concentrates the mind and makes things easier to remember. Things are not always as they seem.  I’ve seen the consultant and now I’m told my tumour is too large for an op and I’m now programmed to start chemo, carboplatin/cisplatin with gemcitabine, which I’m told is aggressive and not very pleasant and is not always tolerated.  This will be on a 21 day cycle for 3 – 4 cycles.  Depending on the outcome this may be followed by radical chemoradiation or cystectomy. 

  • I hope the treatment goes well with minimal side effects.Best wishes Jane