Hi, my partner was recently diagnosed with mibc after 3 months of gross haematuria resulting in emergency admission to hospital and needing 3 transfusions before turbt under general anaesthetic. He kept being fobbed off with antibiotics by 7 different medical professionals until bloods showed he was in need of transfusion. A large tumour was found and most was removed but the surgeon couldn't get it all. After a 6 week wait for follow up appointment we were told it is mibc and that he needs 9 weeks of chemo then a ct scan followed by 3 weeks of chemo then decide on either cystoprostectomy or radical radiotherapy. We now waiting for oncologist appointment to arrange this but last night he started to bleed again with clots has anyone else had similar, we just seem to be waiting for appointments that never come. Thanks x
Hi and a welcome from me. Unfortunately it is not the first time we have seen symptoms being overlooked but good to know your partner is now in the system. I was muscle invasive and went the chemoradiation route. That was nearly ten years ago and so far so good. When waiting for treatment I had some heavy bleeds. Your partner may be called for a follow up TURBT. Thus is not unusual. The time taken for chemo will give him the chance to find out about his options. Following chemo they may look again and review the situation. Best wishes.
