Good evening, I'm slightly ahead of you then. Diagnosed with small cell neuroendocrine bladder cancer. Had chemo1 (cisplatin and etopocide), was having chemo2 Friday, however low white blood count has meant this is rescheduled.
TMI time, during chemo, which for me is 7hrs IV in hospital, then 2days tablets at home, was being given a water tablet to take aþ home to ensure I released any fluid build up. OMG, the relief!
I am 46 and have been diagnosed, it just does not make sense to me. I have young children. After reading all the research I would say that it comes out as a 70 plus disease because they do not test for it. I only found out by chance after an ultra sound.
How are you well I hope, Just a waiting game for me I wonder how long I will have to wait for my op, Its not like they give you a date and you can plan for it! The doc Surgeon phones you out of the blue xx
Yes happy to be your bladder pal, I had to look up your cancer it says it's a rare cancer! Are you coping ok with the chemo, I 'm not getting any chemo as its not very effective on a solid tumour
I had my Turp I have a solid Tumour and has spread into the walls of the bladder so has to come out along with womb and other organs, Not sure when I will get the operation I was told by my urologist the surgeon doing the op will phone me
I had my TURBT I have a solid Tumour and it is in the wall so will have to come out along with other organs
Sorry to hear of your cancer at such a young age! It is a big shock to the system at any age, cancer is emotionally destroying, Your young don't lose heart I have heard some successful stories and if caught soon enough can treated and give you many more years at life!
It's only a week since I got the results from the urologist he seems to think I will do well as I was a bit apprehensive thinking my age was against me with such a big operation! Not sure how long I will have to wait Lv Anya xx
Hi Anya,I hope you don’t have to wait too long.It’s good if the urologist thinks you will do well.Have you got someone to look after you when you come out of hospital ? Most people need a bit of help for the first few days.Love Jane xx
Definitely agree with Jane, it's helpful to have someone to help out when you get home. Fatigue creeps up on you, so don't try to overdo things when you get out and an afternoon nap can help. The rule of thumb is six months to recover, but it varies from person to person.
Gentle exercising like walking helps. UCH recommeded that I take an easy ten minute walk i.e. 10 minutes out and 10 minutes back each day, depending on how well you're feeling. Once you learn make adjustments to your peeing routine, you should be able to lead a pretty normal life.
