awaiting TURBT terrified of results

Hi Halofan and a warm welcome to this friendly and supportive group. We know how you must be feeling at the moment as many of us have been there. Good to know you had a good proactive GP. These things are sometimes missed. Firstly be aware that bc can be treated successfully and it is not the end of the world. The TURBT procedure is fairly straightforward. Usually done in day surgery, but prepare for an overnight. They will take biopsies and send them off for analysis. As you know, then a few weeks wait for results. The results then determine the next step. It sounds as though you have been caught early which should make things earlier. Lots of experience here so don't be afraid to ask questions. Best wishes. 

Hello Rily

thankyou for your reply and kind words of reassurance. I will try to keep myself busy throughout the waiting.

One day at a time really

Thanks xx

Hi Halofan

First of all please accept my deepest sympathy for the loss of your sister, and I understand your reason for not telling your family. 

Hopefully you have a good friend that maybe you can tell and get support from

I was referred by my GP in Jan 2023 (I am 61, female)

It was such a shock, I had my TURBT 6 weeks later, they removed all the cancer and I will have a follow up check in June

Prepare for lots of waiting for appointments and then results, it is a very stressful time, so you really need somebody to confide in

Thinking of you, take care, love Tina X

Hi Tina

thanks so much for answering my post.

(I am 62 female) I feel reassured by your words of your experience, I have just been in a state of panic really, it doesnt help that i have kept it from my family, but they have been through enough really. I plan to share it when i get the results of the turbt and treatment plan.

Its hard keeping it from my son (23) but he doesnt need the worry. My husband really doesnt know what to say, he does listen to me though so that helps.

Your reply was kind and positive and it sounds like you are coming through it. 

Take good care of yourself xx

Hi Halofan, firstly being a Christian I have as requested prayed for you.

Secondly as Tinkerbell says , so sorry for your loss. Lost my elder sister last autumn, it leaves me the eldest in my family now which is kind of lonely in a way.

Beyond that rily's words and Tina's are very wise. Glad to hear you have told your husband. He would be welcome on here or the carers' forum if it would help him. [It's not me but my not-a-forum-person OH in our house, who lives with a history of bc]. And you and he can each always call Macmillan 8-8, 7/7 for a chat.

best wishes, Denby

Hi my lovely I felt exactly the way you did as this happened to me. It’s the waiting and not knowing what’s going to happen. It’s hard to keep this to yourself as you have nobody to discuss it with. 

Hi sorry I wasn’t finished my reply to you. Yes the same happened to me. 56 year old female. Had microscopic blood in my urine as I keep check as I’m prone to utis. Doc referred me to a consultant and I had an ultrasound and CT scan. They found a 5cm growth and I had a TURBT to have it removed and tested. I thought if it is cancer then it could be easily treated with a bladder wash chemotherapy. Turns out it was stage 3 aggressive invasive bladder cancer. My world fell apart as you could imagine. After weeks of waiting more tests biopsies scans etc I had a fantastic surgeon who did my op. I had a radical cystectomy and a reconstruction of a neo bladder this was all done by keyhole surgery as the healing time is much quicker. My histology came back clear which meant I didn’t need chemotherapy afterwards. I’m 12 weeks post op now and doing good. My body is recovering well and I’m just so glad that it’s all over. Not saying it won’t come back in the future but glad I have more time. If I hadn’t fount it when I did it would be a different story. Try not to worry things will work out for you. 

thankyou Denby for your prayers and kindness. I already feel like I am among people who care very much.

I know It will be better for me when I know what I am up against. 

best wishes to you

Hi Dewdrop

It sounds like you have had the hardest of times, and major surgery. It is great newsthat you are out the otherside and recovering well.

I am hoping that they have caught mine early , and will be eternally grateful to my GP for her diligence, she is a young lovely woman, very caring. As you say with your experience, thankgod they found it when they did.

Take care with your recovery,I am learning to be kind to myself 

Thanks

Hi Halofan,Welcome to this friendly group.I’m so sorry about your sister.I hope you will find plenty of emotional support here.Love Jane x