Feeling of dread every day

  • 12 replies
  • 79 subscribers
  • 940 views

I know iv not been diagnosed yet not even had biopsy yet waiting for my appointment but i cant shift this horrible feeling that im going to be told its terminal. They have seen a tiny papillary lesion neck of my bladder could be nothing could be tiny tcc. I feel like im going crazy. Im going to call g.p this morning see if can give me something to help. I just cant cope

  • I am not that experienced as only diagnosed myself last July but if they have said tiny lesion I should think it will be removed fairly easily and you might not even need any treatment, just follow ups. I had multi focal large tumours surrounding bladder neck and CIS (carcinoma in situ) grade 3 PT1 but I am still here after having it removed and having treatment, I am having to stay hopeful after reading lots of vlogs on here that people are surviving and there is hope.

    Try not worry too much, I know that's easy to say but as soon as you get your appointments and get it removed you will feel better. Then you will know what you are up against, I know we all think the worst and think that's it, we are going to die but that does get better as time goes on and you realise you can cope because you have too and you surprise yourself at how strong you become. Fingers crossed it will be fine if it's tiny. 

  • I have lower back pain which to be honest iv had for years and years and sometimes when i walk pain goes down my leg and my foot goes tingly and this is why im panicking what if its spread but surely to spread would need to be a lot bigger thats what im thinking? And the pain hasnt got any worse it stays the same

    I have put on a lot of weight aswell over last few years so maybe its just weight causing it. I did start back slimmimg world last tuesday as im getting married.

    I just hope im going to be ok

  • For goodness sake Ennaj00 go see a chiropractor as what you describe is classic sciatica ie trapped nerve symptom. They can sort this.

    Likely you got it having kids, because the hormones that soften up your ligaments to ease the birth make it easier too to twist slightly wrong without even knowing it, then it maybe doesn't go quite 100% back straight only 99%, and this is what causes the lower back pain and occasional shoots down your leg.

      Losing the weight healthily is always a good idea but on it's own it won't deal with sciatica. Nor will the NHS unless they have NHS chiropractic where you live. Chiropractors are very highly trained in assessing problems that stem from the spine eg misalignments and in hands on treatment to relieve pressure on nerves. I know, I had the same without being overweight and it's never come back. Sciatica pain and cancer are two totally separate things love.

  • I did think it was sciatica but sometimes i also get niggling pains in my hip area and pelvic area. I am sure its more to do with my weight i do a lot of walking as i dont drive so i get enough exercise. I think now im catasrophising every pain i have thinking iv got cancer thats spread but the lower back pain and pelvic pain had for a good 2 years leg pain comes and goes dont get it all the time mostly when iv been work and i walk home. Just to point out i had an ultrasounds externally and internally on my pelvic region may 21 and feb 22 and nothing has been picked up not even this lesion that the cystoscopy picked up so am i being silly thinking its metastatic cancer from a tiny lesion that i dont even know is anything yet?

    Im driving myself crazy

  • I hope you will be too. Your mind is in over drive at the moment thinking the worst, which is normal. 

  • My g.p has rang me she said my back pain and leg pain just sounds like normal back pain. She said if he has described it as tiny then this wouldnt have spread it would be a lot bigger and the rest of my bladder wouldnt have looked ok plus the fact that iv had 2 x ultrasounds previously that has looked at my pelvic area and seen nothing of note. She has prescribed sertraline for anxiety but this takes weeks to work. I just cant stand the waiting its driving me mad 3 to 4 weeks he said i thought if suspect cancer needs to be done within 2 weeks

  • Hi

    The trouble is, until you get a clearer picture of what's going you think every ache and pain is possibly due to cancer.  Now if you do have bladder cancer, given the information you've provided,  it would seem to be in an early stage. Now all of us on here have gone through this anxiety and it's worse at the early stages because you are not familiar with the terms and phrases used. Most bladder cancer is treatable, but bumps lumps, discoloration can occur anywhere and don't result in anything sinister.

    Fortunately, on this group there are many people who will support and help you, so don't be afraid to ask questions. You might want to talk to one of the Online Nurses, they're great.

    It doesn't matter where you go, there you are
  • Hi

    Thanks for reaching out. Iv read so much online that only 5% can be benign not sure how true that is. Iv just spoken to my g.p she said my back pain and leg pain just sounds like what it is. She said if its tiny then that couldn't spread as needs tp grow 1st and it would be a lot bigger (hope thats true). Also i had the back pain and pelvic pain when i had the ultrasounds bk in 21 and 22 and she said nothing was seen so shes thinking whatever it is is too tiny to be picked up or she said it could just be inflammation as i did have a uti beginning of feb. I dont know he did show me it on the screen but to be honest all i can remember is looked a bit red at bladder neck and white floaty tissue. Im really not coping well at all iv just cried non stop since friday

  • Hi

    You need to be very careful with stats. You need to check who has published them and when they were published. For example , most Bladder Cancer patients survive five years after treatment. Now this doesn't mean that at the end of five years the cancer comes back, but that the likelihood of it returning is greatly diminished. Everyone's case is different and you really need to concentrate on you and ask people in the know for advice and help. Too much Dr Google can cause too much anxiety.

    It doesn't matter where you go, there you are