Hi, I sympathise with you- I am feeling like that too- the op I had wasn’t nearly as serious as yours, so I hope you don’t mind me having a moan. Good luck on Monday!
I had my 2nd TURBT on 1st March, I expected my recovery to be much easier and quicker than after the first TURBT, which took 4 weeks, but it’s been 7 weeks now and I’m still not there, and not able to do things, and have had a lot of pain, which is only just now easing up. I had hardly any pain after the 1st op. The 1st op found a massive tumour, which was mostly removed, and the 2nd found multiple tiny ones. G2 PTA, thankfully not invasive to muscle. I am still waiting for proper news and a consultant interview. The surgeon didn’t come to talk to me after the op, and I have only been able to get snippets of info from the specialist nurses about what was found, and what happens next. I was eventually told that the report said ‘not for cystectomy’- which is a HUGE relief as you can imagine! if it’s true…I am as anxious now about all the things I am not getting done and piling up in the house, garden and admin, as about the treatment plan. The next thing will either be chemicals in the bladder, or the removal of my left kidney, which only has a bit of function left, due to the bladder tumour. Apparently the consultant wasn’t happy about the conclusions of the report, so the plans may change. Having M.E. means recovery is bound to take longer than usual, but it is hard to keep strong and cheerful at the moment, feeling rather left in the dark. It was already hard before the bladder cancer, living with a chronic illness. I am gradually recovering from the op, and doing my best to be pro-active and healthy with no energy..and have signed on with a herbalist, who is giving me herbs and chinese mushrooms and things for the cancer and for the M.E.
Thank you, yes I must admit I am scared. I had a phonecall from the hospital this morning, got a talk with consultant on Tuesday, and pre-assessment on Wednesday, so things are happening soon it seems.
I don’t have M.E but I do have chronic health problems that cause exhaustion.I don’t think people who are fit and healthy have much understanding of those who struggle with ill health.I’ve just had my 84 yr old aunt visiting and I couldn’t keep up with her walking pace or the amount of activity she expected of me in the day ! Good to hear that things are moving forward for you.Best wishes for your appointments.Love Jane xx
Thank you! Yes, energy underpins everything else, so the lack of it has a profound effect on our lives. I still have hope of regaining some, so I can be an energetic 84 year old too. All the best for your health. X
Hi, I was told I had bladder cancer 7 years ago in June. Stage 3 muscle invasive and had my bladder removed. It was tough to start with but now it’s my normal. Life changing but life saving.
