I have just been diagnosed and I am waiting for an operation date
Most of the posts on here are about or from men
I would love to hear from women who have had treatment
I never took the worrying into account, and not sleeping well the last few weeks into account
I am sure it is just my body catching up, Tina X
Yes you’ll be tired, listen to your body and remember to keep drinking. The scabs will start coming away soon and you’ll have some blood in your urine again, try not to worry about that, unless it feels raw again, then of course see the gp as you may have a urine infection xxx here if you need to talk xxx
Thank you, its good to know what to expect, takes the worry out of it
How are you doing?
Much love Tina X
Tired tired and more tired the anaesthetist said I need to start hill walking to help my lungs, did one the other day and still feel like I’m paying the price (I’m supposed to do half an hour of them each day-cornwalls very hilly). So I’m back in it today, just mustering up the strength xxx
I can just about manage 2,000 steps a day at the moment and most of that is to the bathroom and back to the bedroom
Baby steps, one day at a time, if half an hour is too much for you start with 15 mins and increase by 5 mins every coupe of days, better to do some than none
Keep at it, you will get to the top of the mountain and enjoy the view
So much better thanks.
Hoping to get my appointment with the consultant soon.
How are you doing honey? X
Just had heart scan- all clear. Had that all important phone call today, I’ve got my radical cystectomy with lymph nodes removal on Tuesday kind of knocked me off balance, but glad it’s sooner rather than later xxx
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