He had a cystoscopy on sunday following a good few months of faffing with antibiotics etc by GP. as he had some blood in his pee. He was told it was cancer and he could see loads of it in bladder .He was told he would have an op to scrape the cancer out or they may remove bladder and the doctor also said he was concerned it may have spread to prostate and we are now waiting for an initial appointment to come and he had a CT scan yesterday but the not knowing anything else at the moment is pretty hard to bear. Any advice gratefully received. I wasn't with my partner when he had this done so not sure how accurate that all is.
Hi City Girl 9320 and welcome to the group. The early days of not knowing and uncertainty can be stressful for all concerned but be aware bladder cancer can be treated successfully one way or another. A flexible cystoscopy is just a visual inspection and so it is the results of biopsies that determine the next step. A CT scan is standard just to rule anything else out and give them a bigger picture. The usual first procedure is a TURBT (trans urethral resection of bladder tumour). This is where they scrape away the offending cells and send samples for biopsy. Mainly done in day surgery, but sometimes and overnight. Please stay away from Google as there is a lot of misleading and out of date info out there. Please feel free to ask questions here. In the meantime, it is important for your partner to drink plenty of water throughout the day in order to flush and blood and debris out to help keep things clear. Best wishes.
Good evening City Girl 9320 and welcome. As rily has said these are early days in diagnosis and as more information is gathered your anxiety will hopefully become less . There are various treatments which will be considered so at this early stage it’s a case of waiting for results before a programme is arranged, best wishes to you both, J
Thanks for the advice Rily, noted about the water and will keep you all posted as we progress. Feels good to have people in the same boat to talk with.
Thanks.
Sharon
Hi Sharon, my husband had a bladder-full of growths by the time they got to his first cystoscopy. He said it looked like inside-out cauliflower right round as he saw it on the screen. But for him the treatment has been pretty successful over five years and he still has his bladder. They have to warn you and it could come to bladder removal, but all depends on the lab results. What they scrape out in the TURBT will be sent off for lab study which does take a number of days. Then a multi-disciplinary team meeting is usual to decide what's best to offer him. So best in the meantime to try to keep busy to avoid dwelling on it as much as possible.
One thing is pretty sure, whatever happens it is likely there will be people on here who have had a similar experience who can advise and support.
Best wishes,
Denby
Thank you so much for those hopeful words Denby. It certainly makes it feel not so hopeless as it is currently in our minds especially as the doctor mentioned the possibility of it spreading. He also said its the invasive one in the muscle wall. But we will just have to wait and see what happens.
Thanks, Sharon
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