BCG infusion side effects.

Hi Miss and welcome to the group although sorry to hear you are suffering BCG effects. Some people tend to find the effects far worse than others. Have you had your wee tested for any infection? The basic advice is to avoid any irritants such as coffee and strong tea. It is important to drink lots of water. This sounds like a contradiction with frequent urination, but not enough water concentrates the urine making it acidic and irritates the bladder. Best wishes.

Hi rily and thank you for responding. Yes I have had urine tested and bucket loads of antibiotics despite it being clear of infection.  I am in so much pain now it is difficult to walk anywhere. I had a flexible cystoscopy which showed a lot of inflammation.  It' being suggested now to have a general anaesthetic for a rigid cystoscopy for a biopsy and diathermy to cut away some of the inflammation. I was wondering if anyone else has had this? Does it make it better or worse? 

Thank you for your time and consideration. Miss.

Hi Miss,I’m so sorry to hear you are in pain.Before cancer I had chronic inflammation in the bladder.This was often treated by diathermy and it did help to calm things down,Basically they use a small electric current to burn off any diseased areas.It might be worth trying dietary changes too.I found tomatoes and onions caused the most pain,anything spicy or citrus is best avoided if the bladder is inflamed.It might not help but worth giving it a go.Best wishes Jane 

Thank you for the quick reply. I was very unsure as to whether I should go for it or not. You have reassured me.  I shall try the diet changes too. Best wishes. Miss

My inflammation was not caused by BCG but hopefully the diathermy will calm things down for you a bit.I had over 30 years of ulcers and red areas which caused pain,frequency and urgency.It is miserable having to be in close range of a toilet.Best wishes Jane 

That's really useful to know. Thank you. I hope all is well with you. Kindest regards. Miss

I have no more pain as I had my bladder removed due to the cancer.I don’t miss it at all.

I'm glad you are not in pain. Thank you for sharing. 

Thanks.I’m always happy to share/help in any way.I hope you find this group helpful and supportive.Jane