bladder cancer

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Hi, I am a 68yr old male, and it has been a whirlwind of emotions over the past 3 months.  Blood in urine, went for CT scan and been told it was cancer.

Been admitted to hospital 5 wks ago, bladder and prostrate removed and I now have a stoma bag.  Managing well with the bag but its the pain.  Is it normal to have pain?

  • Welcome to the group. What a lot in a few months for you. Five weeks is very early days in the recovery process. What sort of pain do you have? It is normal to have all sorts of aches, twinges & pain in this time, but should not be unbearable. Sometimes there is nerve damage which causes pain, otherwise it can be scar tissue, muscles re-activating & so on. Are you managing to eat Ok & keep up regular walking? 

    I had RC & neo, but plenty of folk with stoma here too. Hope things improve soon.

  • Hi Wee Man,Welcome to the group.It’s still very early days in your recovery so some aches and pains are to be expected.If you are in severe pain then you need to get medical advice/help.Your body will still be healing.It is major surgery and recovery takes time.It’s important to listen to your body.If you feel tired then you need to rest.It’s common to feel tired and weak at the beginning.Eat little but often,keep hydrated and keep mobile but don’t overdo it.At this stage I could just about walk slowly up and back to a nearby post box.I built up the walking distance over time and was given the good advice here to take much smaller steps.I hope the pain lessens soon.There is lots of advice on here as several of us have been through bladder removal.Best wishes Jane 

  • Hello Wee Man how is it going, the pain has it eased off any. I am still waiting to hear from the ct scans with contrast to see if the cancer has spread. If all is OK i will be having my bladder out and prostate. in a few weeks time.

    Regards Ronnie

  • Hello from Ronnies wife.to all that has helped him through his jurney He had his cystectomy yesterday and all went well. i have seen him today and he looks good. the doc said it went very well and they got it all out. Time to recover know and get back home they say in a weeks time ,

    Regards from 

    Sylvie

  • Hi Sylvie,Good to hear Ronnie is through the surgery.Best wishes to you both Jane

  • Great news xx time for you to relax a bit now xx he is in the best place for care now xx it's been a very stressful time for you both Heart

  • Fantastic news Sylvie. Thank you so much for letting us know. Please do give him all best wishes from us forum bods when you next speak.

    Kindest wishes, 

    Denby

  • Just had a call from the hospital and there moving my Ronnie to a no dependant ward as he is doing so well and i can visit longer as well.what a jurney he has been on since Dec 2021 Lets hope 2023 is a lot better for us both.

    Love to all from Ronnies wife Sylvie

  • That is really good,thanks for keeping us updated.Love Jane

  • I was just wondering how things are ? Jane x