Hi. I'm new to the group, and so glad to be here. Two months ago I was diagnosed with bladder cancer. I had a biopsy on the tumour they cut out, the results came back as a grade 3 tumour on the inside of the lining. Then I had another biopsy done, this time from the muscle surrounding the bladder, to see whether the cancer had invaded the muscle. The result was both good and bad news: the cancer had not (they believe) invaded the muscle, however they also found, and took out, a carcinoma in situ which was found in the site of the original tumour. So, both original tumour and this carcinoma were both ‘high risk’. I had that last biopsy on the 16th August. Before they begin whatever treatment is decided upon they now need to do a CT scan of my abdomen and also of my chest. This, the oncology nurses tell me is standard practice before a final decision can be made on the type of treatment I will have to prevent, hopefully, more tumours from growing. So I have what they have termed Non Invasive Bladder Cancer. The oncology nurses tell me that in their experience the treatment I will most likely have is called BSG or immunotherapy. I'm so scared. Can anyone give me any relief from my …..well, my terror, frankly, or any words you think might help? Thank you in advance, very much.
Hi Seamoth and a welcome to the group. I am sure you will get lots of support and advice here as you go forward. Many of us have been in your shoes and know how you are feeling at the moment, but be aware, BC can be treated successfully. As your nurse says, the scans are routine to check nothing else is going on and it gives them a bigger picture of what they are dealing with. If you do go ahead with BCG treatment, this is a weekly immunotherapy treatment designed to mop up any rogue cells and help prevent recurrences. Lots of experience here, so feel free to ask anything. Best wishes.
