Dilemma

Hello there and welcome to the group. I have not had RC, but many here have and I am sure they will be along to share experiences. Were you offered any alternative treatments ? Best wishes.

This is a common dilemma & has to be a personal choice (if you have any option), weighing up all the pros & cons in relation to your individual circumstances. The surgeons have to tell you all the scary statistics so you can give informed consent.

I'm female, chose RC 10 years ago & have no regrets. Among other reasons, I wanted best chance of cure & no stress of continuing check-ups. All went well, no significant complications. I had neobladder (reconstruction), was in hospital minimum 7 nights. Recovery is long & slow, but looking back, it seems a brief period in my life. Am happy to answer any specific questions. 

Hi,Welcome to the group.I had a cystectomy in 2019 with an Ileal conduit.I didn’t have a choice as the cancer was aggressive and causing an obstruction in the bladder.There is plenty of advice and support here whatever you decide.I’m happy to help if I can.Best wishes Jane

I'm male. I had a Radical Cysectomy in January this year for BC stage 4. I'm recovered to most practical purposes (I can wash the car) & we walk 2 miles a day. I'm currently paused for immunotherapy treatment due to it giving me liver problems. I can't have an erection any more, but am aiming to see a specialist to get some more help. Pills are no good. meanwhile we have the horror of a CT scan at the end of the month.

Best take stats with a pinch of salt. I was told before the RC that it would raised my chances to 80%. Post op, I was told my chances were 20%.