Hubby has G3 T2/3+cis muscle invasive bladder cancer. He has had radiotherapy . Prior to this last June he had kidney stent .He had pain inside from them on. April 4 this year he had the stent replaced ,the consultant hoping it would cure pain but since then it has increased and he has been so poorly. He is incontinent , doesn't even get a sensation of passing urine.He also gets a lot of pain in his backside so much so that he can't sit comfortably in a chair. He has to lay on settee.. GP prescribed morphine which helps but I'd like to know why he gets this pain. We have a consultation May 5th to discuss kidney biopsy results and hopefully next step
We feel very alone and abandoned. Do not get check up calls from Macmillan nurses which at least would reassuring.
Anyone else get this sort of pain?
Hello JPF and welcome to the group, although sorry to hear your husband is in a lot of discomfort. We know treatment can cause many various pains, and stents are known for having side effects. Saying that, it seems as though your husband is suffering more than most. It sounds as though he needs an expert opinion. Has he been allocated a CNS which is usually the first port of call? If not, try his consultants secretary to try and get a phone consultation at least. Has he been checked for an infection? I hope he gets some relief. Best wishes.
