Hi. I’m new here. For the past week or so I’ve been watching and reading the chat here the support and general uplifting of others tat I’ve witnessed in messages back and forth. Has brought here today. Right now. Because I know I’m meat to be here posting this rigt now
maybe I just want to. Te it all out. Type my thoughts so I read them and know I actually in that place so many of you have been in
so. Past year and a half I’ve been having pain when we ing. Oh gosh sometimes it felt like razor blades glass general feeling crappy each time I’ve passed blood. Enough to see bright red on tissue after urinating and to show as ready colour urine sample I didn’t worry about the bleeding as te doctor didn’t and then when I have cytology they tell me I haven’t had a urine sample positive for a uti since 2020 so why hasn’t the doctor ordered a test instead of antibiotics I wish I knew why as
each time off to the doctors. Given antibiotics. Maybe a month later I’d be back. Same again. In 18months 11 uti. Or so I thought. I had another bad one. Pre ing blood. Pain in back. Lost bit of weight no appetite. Doc treats me again with antibiotics
but the next day rings me and says no infection. I’m sending u for urology test to rule out anything sinister. I asked why. And she said. Because I have blood I can clearly see But no infection
so ll with two weeks I’m here. I’ve had cytology in hospital was awake put camera in. Said found large area of concern shown me. Lots of bleeding within the bladder wall and what looked like
polyp I was told then I had to have a ct scan with dye. A pre op a Covid test and an operation
ttoday was the last bit the operation
feel a bit sore. Throat mainly. That’s from the general a aesthetic probably.
now I wait for histology
my sheet says primary diagnosis is bladder cancer
and now it’s a two three wk wait for results
no one has spoken to me. I just had to stay on ward until I could wee n general anesthesia had worn off
I’ve known deep down it would be this. And although like I say no one has told me more than a large area of concern
but this paper sheet says primary diagnosis bladder cancer
and that a cold cup biopsy to red patches x2 posterior wall looks more suspicious than dome
sorry for wittering on
and breathe. Feel better just because I’ve off loaded to someone. So if you read this. Thank you very much and hope you are well xxx
Hi Barbra51 and welcome to the group. Witter away. We understand and know how you must be feeling at the moment. We have been there. Firstly, be aware that bladder cancer can be treated successfully in most cases. Your throat will be sore because you would have had a breathing tube in. It should get better in a few days. They would have taken biopsies and the results will determine the next step. The waiting for results is something we all get anxious about. Ladies in particular are often diagnosed late because of of the lady problems being considered first, so you are not on your own there. Lots of support here, so ask anything you like, or just have a chat. Best wishes.
Hi again Barbra51. Telling friends and family early on can be difficult. Just the word cancer can frighten people and they don't know what to say. I found once I broke the ice, I was open and honest with everyone regarding my treatment. This made people more comfortable talking about it. I have teenage grandchildren and their mum's explained things to them. Kids are more savvy than we give them credit for and they gave me great support. I always used a bit of humour with the young ones. Early days, and it can be a bit of a slog, but you are in the system and you will be well looked after. Late evening now, but I am sure others will be along to show support as you go forward. Best wishes.
