Hi. I’m new here. For the past week or so I’ve been watching and reading the chat here the support and general uplifting of others tat I’ve witnessed in messages back and forth. Has brought here today. Right now. Because I know I’m meat to be here posting this rigt now
maybe I just want to. Te it all out. Type my thoughts so I read them and know I actually in that place so many of you have been in
so. Past year and a half I’ve been having pain when we ing. Oh gosh sometimes it felt like razor blades glass general feeling crappy each time I’ve passed blood. Enough to see bright red on tissue after urinating and to show as ready colour urine sample I didn’t worry about the bleeding as te doctor didn’t and then when I have cytology they tell me I haven’t had a urine sample positive for a uti since 2020 so why hasn’t the doctor ordered a test instead of antibiotics I wish I knew why as
each time off to the doctors. Given antibiotics. Maybe a month later I’d be back. Same again. In 18months 11 uti. Or so I thought. I had another bad one. Pre ing blood. Pain in back. Lost bit of weight no appetite. Doc treats me again with antibiotics
but the next day rings me and says no infection. I’m sending u for urology test to rule out anything sinister. I asked why. And she said. Because I have blood I can clearly see But no infection
so ll with two weeks I’m here. I’ve had cytology in hospital was awake put camera in. Said found large area of concern shown me. Lots of bleeding within the bladder wall and what looked like
polyp I was told then I had to have a ct scan with dye. A pre op a Covid test and an operation
ttoday was the last bit the operation
feel a bit sore. Throat mainly. That’s from the general a aesthetic probably.
now I wait for histology
my sheet says primary diagnosis is bladder cancer
and now it’s a two three wk wait for results
no one has spoken to me. I just had to stay on ward until I could wee n general anesthesia had worn off
I’ve known deep down it would be this. And although like I say no one has told me more than a large area of concern
but this paper sheet says primary diagnosis bladder cancer
and that a cold cup biopsy to red patches x2 posterior wall looks more suspicious than dome
sorry for wittering on
and breathe. Feel better just because I’ve off loaded to someone. So if you read this. Thank you very much and hope you are well xxx
Hi . People report all sorts of random pains and aches following a TURBT procedure. In most cases it is residual pain from the op, but in other cases it is everyday aches and pains which we overthink, and think the cancer is spreading. It is usual to think this way. The waiting is always the worst time. Once you get results and a treatment plan, things tend to ease as you have something positive to focus on. If the pain does not ease or get worse, then give your team a ring for advice. The downside of covid is that pre covid we were all allocated a specialist nurse we could contact with concerns. Unfortunately these CNS nurses were reallocated to other duties. Best wishes.
Hi Barbara51, maybe you would find it easier rather than trying to 'switch off' to 'switch' you focus to some absorbing activity to distract yourself. Also getting out in the fresh air helps most of us calm down and get some perspective.
Denby
