Hi
I casually mentioned to my GP early last year that I'd noticed a "flash of pink" in my urine. A few tests later, it turns out I have non muscle invasive, but quite aggressive, bladder cancer. Obviously I'm glad I caught it early but it's turned my life upside down in so many ways.
I don't come to this forum very often, although many evenings my mouse hovers over the link. But I end up going to Twitter or FB to talk crap. I know I'm slightly in denial and that it's my way of coping. I recognise the incredible warmth and support that is being shared here but I also sense the bewilderment in some of the posts and it makes me feel like weeping, because I empathise with it. Anyhow I decided to introduce myself and to thank you all, and Macmillan, for this community because I'm so glad it's here.
Hi trynab_stoical. The way you are feeling is normal. None of us ever thought we would end up in a place like this, but thankful we did. We know we are talking to people who understand. Your bewilderment is understandable as there are many variations of bladder cancer, but there is a wide experience here and so usually someone with answers. I hope your treatment is going well. always someone here to talk to. Best wishes.
Thank you Rily. I expect I'll have a lot more questions and experiences to share as time goes on.
Hi, I was always a very private person online, but surprised myself when I got BC, that this (& other BC groups) turned out to be really useful. I might not agree nor empathise with all the different opinions & emotions, but sharing experiences has been invaluable.
Feel free to drop in & just read, have a rant, ask any questions or simply chat. Best wishes.
You are not alone and there is so much support here. I was 59 went for a run and peed blood straight after. The C word was never mentioned so was shocked when I opened a letter titled "Bladder Cancer what happens next?"
Sounds like your tumour has been caught early - mine was similar in that it was TA grade 2. I have just finished a 6 week course of chemo and am now trying to flush it out of my body.
Someone with Cancer is is a better position to give practical tips which is why I turned to the group after being accused of "fishing for sympathy" from one of my so called mates. I have always been open about my condition but unless you had or have cancer the journey won't be understood. Anyway welcome the the bladder club!
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