Newly diagnosed

Hello Gerry and welcome to the group. This is a very supportive place. Many of us have been where you are now and have come through it. Lots of varying experience here, so feel free to ask any questions or express any concerns. If you would like to give a bit of background as where you are up to, it may help. Best wishes.

Hi Gerry,Welcome to this friendly group.I hope you find it helpful.Best wishes Jane

Diagnosed in Aug last year bit of a shock to system have been treated with B C G not successful now been told surgery only options referred to Leicester but told just have to wait to see consultant hope that's not to long in the mean time it's nice to talk to other in the same biat

Thanks nice to have support out there 

There are some lovely supportive people on here.I joined in July 2019 and the advice here got me through surgery and the recovery.Best wishes Jane

Hi Gerry

Welcome to this wonderful forum. Ask any question you want as there is no such thing as a silly question here

This forum was so helpful to me in the early days, I cannot praise the people here enough.

We are here for you

Love Inanna x 

Hi Gerry, have you been told why they say surgery is the only option, ie that cancer is now muscle invasive or something?? In which case obvs they are the experts. My husband's BCG 'failed' as in, he had a new papilloma 6 weeks after the 6th BCG. But he was offered RC, more BCG or Mitomycin as equal choices. That is chemo-into-the-bladder and it has given him 4 cancer free years so far. True we are waiting to see if a recent red patch is cancer or not, op next Monday. But it seems some hospitals do not mention the Mitomycin for whatever reason. Just thought I should check in case you had never heard of Mitomycin.

Denby

Thanks for that information when I can finally speak to the surgeon I will ask the question 

Been ref to Leicester waiting appointment thanks

That's good, to have a specialist opinion. Depending on stage, chemo-radiotherapy might be an option too. Plenty of us who have had surgery if you have any questions when you know more.

That's good to know thanks