I'm Kidney Been - I eventually found my way here from the general forum for newcomers. Learning how the web site works is a little challenging, but I'm getting the hang of it I hope! My thanks to those of you who have responded to my posts etc on there. Some of you are also on this more focussed forum for BC victims.
I will have a browse through the various threads, which will no doubt give me more of an insight into the subject and how it affects us etc. I think it is good to be able to talk anonymously to others in the same or similar position. I am trying to get used to the idea, of what is going to happen to my body shortly, with Radical Cystectomy and Urostomy due 11/01/22.
At least I should be completely out of it during the procedure, The last treatment was a TURBT done with an epidural, so it was really weird to be wide awake, while they were doing whatever to me from the other end of the table! Unfortunately, the tumour had invaded the bladder wall and muscle, so complete removal is the only realistic option.
I would have liked the next stage to proceed sooner, as I find the waiting quite hard, wondering whether it could spread somewhere else, as latest problem must have come from the original tumour in a kidney, removed nearly a year ago. Hence my user name, a kidney been removed!
Hi KidneyBeen and welcome to the group. Glad you have found us. Lots of support here both practical and emotional. We know how you must be feeling at the moment. The waiting is something we never get used to. Feel free to browse the threads and join in if you want. Most members have their stories in their profiles. You can see this by clicking on a members name or avatar. I hop all goes well for you. I went a different route to you so no help with RC. Best wishes.
