Hello, I’m new here so not sure where to start! I was diagnosed with low grade bladder cancer in January 2020 and had two tumours removed (one 3cm and one 1cm). Although it was low grade, the fact that there were two meant that it was recommended I should have a 6 week course of Mitomycin as a follow up. Unfortunately, the first lockdown began the same week the treatment should have started, so it was cancelled. I completely understood the need for this and didn’t have a problem with it. To cut a long story short, a cystoscopy six months later was clear and a further one was promised six months after that, which would have been last January. In fact that never happened and I wasn’t called back until August this year, when another small tumour was found and subsequently removed with a TURBT procedure in September. I was really disappointed the cancer had come back, but again it was found to be low grade, which is hugely reassuring. It has now been decided that I should have the course of Mitomycin.starting this week. I’d be really grateful to hear from anyone who has had this treatment who can let me know what to expect. The treatment should end the week after Christmas and my son’s family, which includes three fairly young grandchildren, were hoping to come and stay for a few days over Christmas, but are now wondering if they should cancel. I’m very hopeful that I’ll be feeling fine, but would really appreciate hearing advice from anyone who’s been through it.
Hi and welcome to the group. Sorry to hear of your recurrence, but we know it does happen. Good to know you have had it cleared and are about to start mytomycin. I went a different route, so no help there, but I am sure others who have experience of this and also BCG which is administered in the same way should be along to help. Best wishes.
