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FormerMember
FormerMember
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I had a routine cystoscopy in January where they found something, I then went for a TURBT in February & finally got my diagnosis in March G3T1, I couldn't have BCG or CHEMO due to me having had a kidney transplant so on the 11th May I had an RC where they removed both my native kidneys & my womb & ovaries at the same time. Unfortunately I got neumonia & pluracy a couple of weeks after so ended up back in a couple of times so missed my 6 week check ( I'm going this Thurs), hopefully I will get some good news. I didn't really want a urostomy but at least I'm still here and there's a couple of silver linings, no more monthly cycle & don't really have to queue for the toilet now, haha.

  • Hi Alina78,Welcome to the group.Sorry to hear you had to go back into hospital after your urostomy.I hope you find some support and advice here.Best wishes for your check up tomorrow.Love Jane x

  • FormerMember
    FormerMember

    Ive never written anything here , but just having read your story want to wish you well for your appointment this week best wishes Swimbler

  • Hi Alina

    You have been through the ropes but I love your humour. A sense of humour is so important.  I had a urostomy 16 months ago. My stoma is called Basil, after Basil Fawlty and he is my best friend because he saved my life. Basil and I jog along nicely.

    I had womb and ovaries removed, I am 69 so haven't had periods for years but as you say there are silver linings.  Not having to get up at night and not having to pee like a girly anymore which saves a lot of time lol.

    I wish you all the best and fingers crossed Fingers crossed for good results 

    Love Inanna x 

    I know that I don't know
  • FormerMember
    FormerMember

    Hi Alina, think we all would not like a urostomy, my RC is on 18 August, but it saving my life and I can see my son get married next year in greece, I worried about my op but yours alot bigger involving your kidneys. Hope all goes well with your check up xxx Amelia 

  • All the best for your coming op

    Love Inanna x 

    I know that I don't know