Hubby now only getting palliative treatment

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My husband started his cancer journey in 2015 aged 54 when he saw blood in his urine.  Went to see the GP who referred him to Urology at the local hospital and it turned out to be Transitional Cell Carcinoma (urothelial cancer) in his left kidney.  He had a biopsy  and then a nephroreterectomy and was back at work after 6 weeks.   2017 found a metastasis in the top lobe of his right lung so lobectomy performed and course of chemo - he didn't manage to return to work after that operation as has subsequent breathing problems, lack of energy and nerve pain from the operation.  End of 2019 found cancer in bladder during routine flexible cystoscopy so TURBT performed with course of chemo.  Early 2020 further bladder cancer so another TURBT with BCG immunotherapy.  Followed by 2 top-ups.  End 2020 flexible cystoscopy showed cancer neck of prostate but surgeons decided to monitor and continue with BCG.  Before end of next BCG top-up, blood in urine and pain near prostate.  Biopsies taken in March which showed muscle invasive cancer in bladder and radical cystectomy recommended.  Further tests undertaken including PET scan requested by the surgeon who was to complete cystectomy only to find that the cancer has metastasised to his shoulder, left adrenal gland, prostate and pelvic lymph nodes so now only palliative treatment.  He is 59 and if you looked at him you would not think that there was anything wrong with him.  He is having pain management,  not working yet but hopefully soon.  Doesn't help that he keeps getting bladder infections.  He was told the outcome on 26th June but we don't get to see the oncologist until 4th August.  Cannot fault the urology nurses (his other wives as we call them) nor the respiratory team who dealt with his lung but to be honest the amount of chasing results we've had to do over the years, including this year has been ridiculous.  Even our GP has had a hell of a time trying to contact Urology to find out what is going on.   We are both devastated and the delay in being able to see the Oncologist isn't helping as we need to know where we stand.  Sorry for the long message Cry