Hello from a BC newbie

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Hello everyone

I am ‘Bluebear’.  I am a 54 year old female living in the south of England.  

I was diagnosed with bladder cancer in May.  My cancer was discovered purely by chance when I had an MRI scan in connection with some other unrelated symptoms.  I had not had any symptoms typically associated with BC so this came as quite s shock.  

I am now 19 days post TURBT(+ Mitomycin C dose) and have had my results: pTa, Grade 1.  I feel fortunate that the cancer was discovered as I don’t know when I would otherwise have suspected and also that my results, for now, are encouraging but as someone who likes to research things in detail (for better or worse!), I constantly find new things to worry about.  My latest anxiety is the frankly mystifying and contradictory statistics (these have been supplied to me by the hospital treating me) on risk of recurrence which I know with BC is unfortunately considerably higher than most cancers.

I would love to hear from anyone who is dealing with a similar diagnosis, has past  experience of similar or anyone interested in the stats issue (in fact anyone at all really Slight smile).

Thank you for reading this and wishing you all well.

Bluebear x

  • Hello  and welcome to the group. I am sure you will get plenty of support here as you go forward. In the great scheme of things, your results are quite positive. Low grade and caught early. We know bc has a habit of coming back, but not in every case. Because of this we are checked regularly with flexible cystoscopies which is reassuring. I personally have been clear for many years and am still getting 6 monthly checks. Have you been given any information on what treatment, if any, they have lined up for you? Best wishes.

    Best wishes to All,   rily.

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  • Hi Bluebear,Welcome from me too,it is a friendly group.I hope you will find it helpful.Love Jane x

  • FormerMember
    FormerMember

    Hi Bluebear21 I know you will have concerns but I would feel confident with your diagnosis, great that it it is low grade and not to developed. Even though it is Cancer you can be certain that the early treatment will be valuable and effective. Regular checks will no doubt follow an these will keep you safe. I have had bladder cancer which following my TURBT turned out to be high grade and a bit further advanced going into the ureter and finding another low grade cancer in the bottom of the bladder and prostate, so after a hefty op with kidney bladder and prostate gone I am recovering and can tell you even at that stage I now have had clear results after surgery histology. I am confident in a new future even if it differs from what I imagined. Best wishes and good future. 

  • Thanks for the welcome rily - it is  so encouraging to hear from others who are way down the road  on this weird journey and doing well.  At the moment they don't propose any further treatment, just the cystoscopy follow up in 3 maths. I am grateful for the reprieve but bracing for whatever news the check up brings. Not taking anything for granted.  

    Bluebear.

  • Hi Fester100  

    Thank you for sharing that.  It is certainly hugely helpful to hear so many people are overcoming what can sound like scary diagnoses, to a newbie like me.  

    Bluebear

  • You are welcome.There are a few people here who have regular cystoscopies to monitor their cancer.Some of us have gone through bladder removal.There is usually someone who can help with any questions you may have.love Jane x

  • And Hi! from me, have been on first visit to younger daughter since Christmas 2019 and away from emails. My husband had G3 pTa and has had 6 BCG plus quite a few Mitomycin. Now it is just 6 monthly checks. It really is one of the best cancers to have if one is to have any, as if not muscle invasive like yours and his, no systemic treatment such as makes people's hair fall out or give awful nausea is required. As Jane and rily and others say, a group where you are really welcome and very friendly.

    Denby

  • Thanks Denby.  I am certainly feeling a lot more positive than in the early weeks. 

  • Hi bluebear21

    Remember to be kind to yourself. What you've been through is huge...

    You can access support by means of talking therapy through this site if you need to talk about your anxiety or worries about the future. 

    Sending love

    Clare