Hi again.....
It's now 3 weeks since the TURBT where I had a 2\3 cm papillary tumour removed and biopsy. I thought (or hoped) I would have heard something by now. I have no idea what I'm facing yet and it's getting handstand harder to stay positive. I'm exhausted too which isn't helping. Just had to leave shopping in supermarket because I just started crying for absolutely no reason! (So embarrassing). I'm such a strong person, I never show emotion in front of anyone, I'm the furthest holds everyone together. Anyway..... Just not coping.......
You certainly should hear soon. Do you have a contact email or phone for CNS or consultant? it's always worth enquiring to find out timescale. We're all familiar with the stress of waiting for results.
Cosset yourself, have a treat, try to find a distraction in something you enjoy doing, even if that's helping someone else! Alternatively give vent to your feelings - punch a pillow, put some loud music on & yell, write down how you feel.
Hope you get news soon, even if it's. bad news, you will then be able to plan ahead more.
Hi teasswill. I have no clue who the consultant will be or which hospital as so far I've been seen by different people at 3 different hospitals due to the COVID restrictions. I have a number for a nurse but honestly, so far she has been far from helpful and just added to my stress by sending me to wrong hospitals on wrong dates etc.
Guess I have just got to keep waiting and try to stay positive while remembering to be kind to myself. X
Hi Aprildaisies. Phone the hospital switchboard and ask to be put through to the Urology secretary and give them a nudge. I can remember sitting and watching the postman walking past the house each day while waiting for an appointment. Anxious times. Lots of delays these days as many staff have been diverted to covid duties. Best wishes.
Hi rily. I have no idea which hospital ..... ha ha....
Its nearly the weekend and I have the grandsons birthday cake to make..... I don't think being home alone all day is helping me much either. Lots of love. X
Have you tried having wall-to-wall talk radio, eg radio 4 or something else if you prefer? It's my best distraction when stuck alone in the house. Enjoy your plans for, and actually making the cake, how old will he be? Just celebrated our grandson's 5th on zoom -though we will see him on Tuesday. Kind regards, Denby
We have 3 grandchildren, he will be 6 on Sunday hes the oldest and he's asked for a lego cake (I'm not a cake decorator by trade.. ha ha). He and his sister (3) lost their daddy to suicide a couple of months ago so if he wants a lego cake I will try my best to produce one.
Thanks for your support. I may call my nurse tomorrow but as mentioned she usually causes me more stress.
Sending love. Enjoy seeing your grandson for his birthday. X
Oh Aprildaisies75, I am so sorry to hear of this tragedy. No wonder you sometimes struggle to cope, that really is a lot to deal with. I'm guessing you might find cake inspiration on Youtube? A couple of thoughts depending on the size/scale you are going for, you can cut templates so as to get repeat size bricks etc from the side of a plastic milk carton or plastic lids eg marge tub. And use an apple corer if there's one lurking in your kitchen drawer, to cut little icing circles to represent the pegs on top of the bricks? And maybe buy one of the mini-kits and put it on top?
BTW Our grandson turned me down for zoom stories earlier this week, as he was too busy playing with the Lego ambulance kit he had had early from his auntie at the weekend!
Sending concerned thoughts, Denby
Ha ha Denby. You are full of creative ideas! I opted for ready made lego bricks from icing I purchased online and a lego race car for on top (hubby had great fun building it for me).
Yes been a tough few months we were starting to think there was a light at the end of the tunnel and now this blooming disease decides to say hi. Hey ho I suppose.
Sending love
I did pottery for years and clay and icing can be similar to cut and shape....As you say hey ho. xx
Hi Denby. Funny you should message at this moment... I'm having a bit of a wobble.
I have just chased my results with the nurse and she said they are not back yet, however I am provisionally on the MDT list for next Thursday (13th). I feel like my world has just collapsed again and finding it very hard to remain positive today.
However I did manage to finish the cake before all this happened so that's a small blessing
Sending love x
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