Hello

FormerMember
FormerMember
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New to this site so just wanted to say hi. I have  recently been diagnosed with bladder cancer and will finish my first round of BCG today. I was offered removal of the bladder straight away as I have rheumatoid arthritis and as I have to stop takin medication for this.declined as. Wasn’t prepared for being given such a bomb shell statement. I’m trying to be positive and after reading a lot of your posts I believe being on here will help a lot . I’m worried and scared but I suppose that’s normal nd I try to carry on living my life as normally as I can 

  • Hello and welcome to the site with lots of encouragement and advice for those dealing with  b/c .. I have also just finished with my first 6week round of bcg 3 weeks ago awaiting a date to have a rigid cystoscopy to check how things are going.. I too am worried and scared but like you I try to keep going along as normal and not think of the future all the time it really can affect you mentally ifHeartyou keep on being anxious and worried xx I know its so hard sometimes but I try my best not to let it be my only thought in life and live and takes one day at a time xx I am 65 married to my hubby for early 47 years and have 2 grown up children xx take care and try to keep smiling Heartlove and best wishes Tina x

  • Hi,Welcome from me too,I hope you find the group helpful and supportive.Best wishes Jane x

  • FormerMember
    FormerMember in reply to Hou

    Hi thanks for the reply I think I need this group just because were all in similar situations and I suppose we know more than any how our feelings go from one emotion to another

  • FormerMember
    FormerMember in reply to winkers60

    Thank you I’m sure it will be 

  • Kwheat, hello and welcome. Just to let you know that I had my bladder removed and took the stoma route straight away. My life is nearly as normal as it was.

    I do hope your current treatment is successful but I just wanted to let you know that life is good with a stoma,

    Inanna  x

    I know that I don't know
  • FormerMember
    FormerMember in reply to Inanna

    Hi I thank you 

    thank you for the reply the best knowledge is from the people who have experienced it so really good to read. How old were when you had it done  if you don’t mind me asking. My consultant a stand in for the regular didn’t help putting over to me especially when he went on about the risks of the op because of my age. Which is 64 by the way 

  • I was 67 when I had the op. My Consultant also pointed out the dangers which is horrible of course. He said I was tip-top healthwise which is one of the reasons I went for RC straightaway. I did not want to take the other treatments for many reasons one being is that later on in time if BC reoccurred and my health would not be so good that RC would not be open for me.

    It is such a personal decision and everyone chooses the treatment they feel what's best for them

    Please keep in touch with your journey 

    Inanna x

    I know that I don't know
  • FormerMember
    FormerMember in reply to Inanna

    Thanks again and I will. 

  • Hi Mr Wilbert was diagnosed  3rd May 2016 After 24 bcg treatments he remains cancer free and has recently been "promoted "to annual checks Good luck with your bcg treatments As Mr W said temporary unpleasantness but well worth it 

    lots of love 

    1. Wilbert 
  • FormerMember
    FormerMember in reply to Wilbert

    Thanks for that and so pleased to read the good  news. Hopefully I will be as lucky