Really really scared

Hi Sara and welcome to this group. It sounds as though things are moving pretty quickly for you which is great but as we all know the waiting is the worst part. If you have bladder cancer it is very treatable as you may have seen from the posts you have read. 

TURBTs are usually day surgery or sometimes an overnight stay. You will probably have a catheter when you return from theatre and may be given an infusion of mitomycin directly into your bladder. It’s is painless but just mops up any rogue cells that may be around. Drink plenty of water after your procedure and you will expect to see some blood clots a few days afterwards as the internal wound heals. Any tumours will be sent for analysis and it will be about 2/3 weeks before you get your results, more waiting again I’m afraid.

The stage and grade will depend on what treatment you will have. Once you know what treatment you will be having there is a wealth of experience on here to answer any questions.

Feel free to ask anything you want, there’s no such thing as a silly question and avoid Dr Google if you can.

Best wishes Luce x

Thank you Luce!! I really do appreciate it. The waiting is just horrible!

I'm hoping the person who does my CT scan can give me a bit more info but from what I've read on here, I doubt it!!

It really is a comfort knowing there's all this support and reassurance on here.

xxx

We all recognise those feelings from first days of detection & diagnosis. Try to focus on the fact that it has been found & so can be treated. If it is bladder cancer, it is very treatable. Size of lesion is not significant, it will be the biopsy report that determines appropriate course of action. Hopefully you will get over the initial shock, try to distract yourself with pleasant occupations until you know the next steps. Best wishes.

Thank you!!

I'm really trying to tell myself that! That I'd be in the same situation if I didn't know so the fact I know is a positive thing! 

Very good to hear about the size of the lesion. That scared me even more!!

X

Sara. You have come to the right place. I have received such comfort, wisdom and support here. As others have said, the waiting is the worst. You feel like  a zombie when the world continues around you. Come on here anytime. There will always be someone to support you and answer your questions. 
XXX 

Thank you so much! I really do feel like a zombie!! xxx

We all know what it is like. I was in total disbelief when my bladder cancer was diagnosed within weeks of walking in the lower Alps. Just take it a step at a time. I have had my bladder removed and I wonder if life will ever be the same again. People tell me that it will be - more or less.

Hi SaraO I am a bit of a newbie on here after been diagnosed in October. I have done my first 6 sessions of BCG now awaiting my flexi on the 29th to see if it’s done the trick the people on this site are massive help and really do get you through it all  the knowledge they have going through it themselves Good luck stay positive

Hi SaraO, and another welcome to the group. Well done your nurse, admit I had to find it for myself as my husband's didn't mention the groups. Just to confirm you should try not to worry about lesion size, my husband's whole bladder was, he said, "like inside out cauliflower" that he could see on the screen 3 1/2 year ago. He's been clear for quite a while after both BCG and Mitomycin and two more TURBTs. As it  depends on the scan and lab results do try to follow all the good advice on distractions. If you feel weepy try to get out in the fresh air more, it does help.

Denby

Thank you so much. You don't know what a comfort these words are to me. I really do appreciate you taking the time to respond. xxx