Hi everyone, my first post. I’ve had ongoing microscopic blood in urine since early March. 2 out of 3 lab tests. I have vaginal atrophy and rectocele and cystocele so Gp wanted cystoscopy done to rule out bladder cancer. I had it yesterday. The dr doing it saw something and said there are a couple that are different to the rest, it doesn’t look like cancer as that grows like coral, but these can turn so we need to biopsy them. I was so shocked I didn’t think to ask what ‘they ‘ were! My husband saw what looked like three dangling finger like things that were jiggling and moving in the fluid as the camera moved by them. I asked the dr are they sinister and he said I don’t think so but we need to check. I then said what can it be and he said a number of benign conditions, I asked directly what’s the chance if it being cancer and he said 1%. He also said by the time the biopsy is done they could have settled down? I explain we go abroard next week and he said that’s fine we will book you in after.
However I have severe health anxiety, i analyse everything he said and play it all over and over in my head to make sure I heard him correctly. I self doubt too.
has anyone had to have a biopsy that has turned out to be something benign? Would he have said the 1% if he didn’t think it was true? Would he have known visually if it was a suspected cancer? Would he have said go on holiday ? I’m exhausted going over and over it and focusing on the 1% rather than the 99% . We have even cancelled the holiday as I’m in such a state.
sorry for such a long post Im just desperate for advise.
Hi Oney and welcome to this friendly and supportive group although sorry to hear of your concerns. We do occasionally see these things on here which do turn out to be benign and so it is possible. We know how anxious the early days of uncertainty can be, but once you have results of your biopsy, things will be lot clearer and they will come up with a way forward. Best wishes.
Hello Oney, welcome to the forum. It is unfortunate that so many people find themselves on here but we can try to alleviate some of your concerns by offering moral support and perhaps sharing our experiences where relevant.
You are very early in the investigative process. It is nearly always the most difficult stage as information is sparse until follow-up tests allow a proper diagnosis. Waiting for test results can be an anxious time lasting several weeks.
I have been on this forum for about 2.5 years. Many have been here much longer. I recall at least 3 other cases where a flexible cystoscopy (camera view of urethra and bladder) showed slight lumps or inflamed patches which, after further tests proved to be non-cancerous. My son in law has not been on here but he also had mild symptoms, tests to investigate and a precautionary bladder washout. No cancer was found and there's been no recurrence since the scare over 10 years ago.
It's a shame you cancelled your holiday. I would recommend that you find some day trips which will occupy your mind until your consultant or doctor has planned further tests. Eventually you will have answers. Bladder cancer is one of the more treatable cancers, so even if you need treatment don't be disheartened. Mine was diagnosed in 2017. I'm still living a fairly normal life despite my symptoms being severe back then. Many on here have similar tales to tell.
Now the difficult bit. We all react differently to these medical events. We all know that worrying does not help or fix the situation. Try to distract yourself from the 'what ifs,' over thinking or googling. Macmillan offer a booklet which tells you all the basics in a factual, undramatic way. It can be downloaded or picked up at a Macmillan room if there is one at your hospital. My very best wishes to you. Ray xx
Hi Oney, I've found that hospital doctors are very very very careful not to say anything unless they have a very strong feeling about it. Also in my 9 years of bc experience I have found the doctors can tell a lot from cystoscopies. Although only a biopsy can definitively confirm a cancer diagnosis and grade/ stage etc, the doctors doing my cystoscopies and the subsequent biopsies have always had a very strong sense of what they have seen. Even if you did have bladder cancer (which sounds unlikely) taking the time to have your holiday would be unlikely to cause a massive problem. They wouldn't hesitate to get you in quicker if they thought a delay was risky honest! So sorry you feel you couldn't take your holiday as it could have been a great distraction while you wait for the biopsy date. We all get edgy waiting for test and results ( for example there is generally a two week wait after biopsy is taken before results come through) So trying to find something pleasant to distract saves lots of anxiety. Sending you a hug. Hx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007