Stress

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Hi

I have just had a cystoscopy check up and  a second tumor has been found, awaiting tula.

Had a tumor removed last November followed by 6 weeks of chemotherapy. 

I am not coping so well this time, husband and son fell out 18months ago and don't speak, my husband goes into garage if they visit which isn't often, that means I don't see his three girls as much as I like, the family fall out is constantly on my mind and now so is the second tumor I am feeling I can't cope , husband is having memory problems that he won't admit to. My daughter and her daughter we see often and she is great support but don't want to burden her touch.

Husband is a narcissist and controlling,  won't let me drive are car so I can have freedom.

What do I do I feel my head is going to explode, I have friends who understand my situations but they have their own lives 

  • Hi  and a warm welcome to the group. Sorry to hear you have to go through it again, but a TULA sounds as though it was caught early and should be dealt with. Having to go through this again without much close family support around you must make it very hard. Having close support and someone to bounce off does make things easier. Always someone here to talk to and even if you don't get a quick reply, you can see people are listening. It's always good to talk to someone in person. The Mac support line can be a great help ( 0808 808 0000 8-8pm 7 days  ) . Best wishes.

    Best wishes to All,   rily.

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  • Hi Nannya, my heart goes out to you. It must be breaking your heart not seeing so much of your son and his girls. Family fall outs are painful and I hope that your son & husband find resolution. I think you have more than enough to cope with ,and its understandable  that all of this is taking its toll on you. I hope you are able to tell your husband how its all affecting you, and that you need his support and help. I agree with Rily that Tula sounds like they caught it early. I wondered if there is a Maggies centre you could go to for support , they do many classes on relaxation , mindfullness and have counsellors and therapist to help us through tough times. I wish you all the best Nannya , sending you a hug to hold on to x

    Much love Angela x

  • Hi Nannya, really understand your feelings about having a reoccurrence. Having dealt with the shock of a cancer diagnosis, the removal of a tumour, then a further 6 weeks of treatment the last thing you want is to hear the damn thing is back. I speak from my own experience! My first reoccurrence came a year after my initial tumour and after about 12 doses of BCG. I had the second tumour removed like a first anniversary present! It was smaller and less agressive than the first.  Subsequently almost annually despite having ongoing BCG doses, I had at least 3 more reoccurrences BUT 4 years after the original 2017 diagnosis and the full 27 doses of BCG I had my first all clear year. Now I am 8 years since the start and I have had 4 clear years. I’ll be going for my next cystoscopy next month, like always I’ll have an anxious night before I go but I have learned to take this unwanted journey one step at a time. If ever there was a time to just focus on yourself, and doing whatever brings you joy it is now. Sorry about the family dispute but hey what really matters is your health. Never mind your husband’s attitude if you need to see your son and grandchildren do it, even if it means meeting them away from home. Cancer over rules any other problems, arguments are small fry by comparison. Glad your daughter is solidly by your side, and we are here too! Sending you love and positive wishes Hx.