Urgency and Frequency - Also alcohol trice a week to relax with wife with DVD - She deserves that.

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Hi.

I have had Bladder Cancer since 2920 diagnosed 2021  - 

Had 5 rigid cystoscopy procedures - After the second after  being told I was getting BCG Consultant said how did I feel about a bladder removal op  - declined  and he was not pleased anyway MDT decided I could gave BCG and had three lots  -- My cancer went from high to low grade   But reverted back..

I was told I was going on a TULA  every  so often - First  one Ok pick and smooth.  Second was looking not great, I was told inflamation  - third showed the low CIS alive and well.  The tumor  is very low and not easy.

So I had my TURBT  The plan was get as much with TURBY and any akward tumor would be removed by TULA, ablated.  That is due within a month.

So things when Igo home after TURBT did not go well, I went into retention and was senr to PRESTO A&E to have a catheter installed. - After the pain the painlessflow of urine to catheter was heaven.  All the pain gone.

So after TWOC   I had catheter  gone.   What followed has been not good   URGENCY even if nothing to pass  - frequency  4 times an hour at one stage,.

district Nurre came and am being fitted for   a condom catheter,  Better that the black or white incontinence pants - I can't see how a condom catheter can deal with Urgency and maybe frequency. I am told better than indwelling because  of UTi s .

So back to now   - Dose having a couple of small bottles of beer and 2 whisky's affect either urg   Wife and I always had two nights reserved for a drin,maybe a go on PS2 and finish with DVD  - Work wife does for me, she deserves that.,  Anyone is this OK with Bladder Cancer.

Any opinions would be good. Thank thank you in advance.

  • Hi ern007, glad you have found this group where I expect there will be others (in particular men) better able to advise than me. Hopefully someone with similar experiences will pop along soon. I'm a 79 year old woman, and since 2017 I've had the full BCG protocol (27 doses) and quite a few recurrences, but finally the tumours stopped reappearing in 2021. Phew ...so far 5 years all clear! During my treatment I kept alcohol intake pretty minimal, maybe two glasses of wine on a Saturday night unless it was actually the BCG dose weeks when I didn't drink any alcohol. Now I still drink far less than prior to my bladder cancer because I feel I need to avoid dehydration, but I do drink a couple of glasses of wine maybe two weekend evenings a week. I also make sure I get 2 litres of water or lemon barley squash most days. One thing I do know is that having cancer means grabbing every pleasure you can enjoy especially with the ones who love us. Enjoy your happy evenings with your supportive wife is my view. Sending best wishes Hx 

  • Hi  . Sorry to hear what you have been through with all the discomfort. Alcohol has always been a bit of a grey area. Some people give up altogether while others enjoy the odd drink. I asked my consultant about this and was told a few beers should not do any harm but try and avoid the gassy mass produced stuff and try real ale. When I was going through treatment, a pint was a welcome relief after a day in the chemo chair. Everyone's treatment is different though, so always best to check with the medics. Best wishes.

    Best wishes to All,   rily.

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  • Thank you  I had most of the BCG but being it went back hi grade  I was put on TULA (Laser)  instead.

    I have drank with Cancer before with no bad effects - this is different with the frequency.  Glad you have no cancer now. I am 80 so not done so bad, not they have a policy find it and zap iit.xx

  • Thank you rily - i have had Bladder Cancer since 2020 - We normally had a drink twice a week. I shared trooper Brown Ale with the wife, I had 4 small whiskies  and was fine - no reaction.  But just befor and after my last TURBT  I have run toilet every 4 hours some days, than makes me wary,  Ernest

  • One of life’s greatest pleasures cake x Cake

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