Just finished BCG 6 week induction

Hi Joyce,

It’s good to hear you have got through 6 weeks of treatment. I hope that as time goes on you will feel less sad and scared.

Best wishes

Love,

Jane x

Thank you Jane ️

Brilliant Joyce, you got the 6 done, well done . Time for you to treat yourself to something indulgent , you deserve it.  This experience does change everything. How we look at life, our friends and family. I have found that I value so much more than i used to. I try not to take things for granted. I too get sad and still feel scared at times, but not like at the beginning. You enjoy yourself Joyce. Is it 6 weeks before your next 3 or is it 12 weeks , I cant remember . Enjoy the break and keep in touch 

Aw thank you Angela for such a thoughtful reply. As I left the treatment today the nurse said “enjoy the summer “ and I thought that’s good advice. He said the next TURBTS would be in 2 or 3 months and depending on what they see then there will be a plan. Your words help. I will try to treat myself!! Thank you. I hope you are well xx

Hi Joyce,

Great to hear you've got the induction out of the way. Hope you didn't have too many issues.

The Maintenance BCGs are only three instillations.

Sorry to hear you've been struggling, I think we all do and we have different ways of coping. It was definitely difficult at the beginning, but has got better for me, but sometimes have a blip.

This forum also helped me and it's really good to hear that others are benefitting also.

Take care.

Trevor 

Thank you Trevor.  I feel that 
cancer keeps trying to steal my joy and also my hope!!  But I’m going to have to realise I’m letting it! I appreciate so much the support from all you kind people  x

Hi Joyce

Nice to see that you have got past/through the induction phase it's giving me encoragement for mine if/when I start  them.  Hopefully it'll be in the next couple of weeks, seeing consultant this coming Wednesday.  If I have any concerns I might take you up on your kind offer of help.

Rob

Hi Rob 

I had a big gap between second TURBTS and start of BCG. Mainly because I’d had flu jab and my nurse had to go home as his dad was ill. I’m very happy to help if I can once you start your treatment. 
wishing you all the best. 
Joyce 

Hi Joyce

I'm just about to start my induction of BCG, first ones on Friday coming up!

I had an agonising wait where they had to repeat my turbt as they were unclear on whether or not I have a T1 or T2 high grade cancer. Thankfully it turned out the original diagnosis of T1 was confirmed.

I'm quite nervous about it all, plus a bit fed up of things being shoved up in intimate places now but guess I've gotta get used to that.

I really struggle with catheters afterwards as my bladder seems to just go in to spasm every time and its incredibly painful. The doctors have had to give me morphine patches with oramorph to top up when I need and also buscopan (hyoscine) to help stop the spasms, do you have any other tips I could try and investigate? 

I'm also worried about trying to live life between treatments, my bladder seems to spasm a lot as I explained before but how do people cope with going out and about with all the bleaching, cleaning and constantly needing to pee all the time?

I've got a friend coming to stay later on in my treatment in about a month and wanna be able to go for dinner and go out in the sun etc but I've been begining to think maybe I shouldn't bother.

I'm so pleased for you that you've made it through the first 6 weeks! And yes! Do live it up and get out and enjoy that sun!

 Kitty xx

Best wishes for your induction course Kitty.

Jane x