Lonely place

Hi Pete S25,I’m so sorry you are feeling sad and lonely but I’m glad you have joined us.People in this group are caring.It’s a big thing to face having major surgery but you can lead a good life after cystectomy.Ask any questions there is usually someone with the relevant experience to answer.Jane x

Hi Pete S25, welcome to this supportive and friendly group. I'm so sorry to hear that you are having an RC and that you are feeling lonely and sad. It's a tough diagnosis to get your head around and when the "C" word is mentioned to family and friends they don't know how to react. I've found that being very open and honest with all my loved ones has enabled them to be open and honest with me too. I don't have any experience of RC but there are lots of lovely folk on here who will be along shortly to share their experiences and advice. I think I have had every emotion going in the last year, I've cried, laughed, been happy, sad and angry, sometimes all in the same day. Hang in there Pete, we are all here to support you and to remind you that Bladder Cancer can be successfully treated. 

Im sending you a big hug to comfort you. Stay in touch on the site. You will get there ️ 

Love Ade xx

Thanks Jane, I am sure you are right. I have read a lot of comments and they are all positive, just need to believe them myself and change my terrible mindset

Thanks Ade, just have to work at it, don't want to be a woe is me person and really am not, just, as you say, lots of emotions, and can't really share. Just not my make up

It is hard coming to terms with the diagnosis and then having to face a big op.The emotions you feel at the start can be overwhelming but you don’t have to be brave on here.I hope you will find this group helpful.Jane x

Hello Pete S25 sorry to hear you are sad and in a dark place i was there its hard to pick yourself up try to think on the future when you are better and making nice memories this forum will help.                     All the best Phil 

Thanks Phil, all the nice words are appreciated. I am sure I will be fine and will work at it. Thanks everone

Keep us updated take care Phil 

Pete, you are going to be ok, I had mine last November, and am doing ok. You are in the right place for support here, a good place to rant, ask questions , get advice, and even have some banter. 

all the best, Leo

Hi Pete - so sorry to hear you’re facing RC and that you’re finding it difficult to share your feelings.
You can certainly do that here and there’s no right or wrong way to feel. 
I don’t have experience of RC but I do have experience of the fear involved in the diagnosis proscedure of this disease. 

This group is full of the best people and they have helped me enormously in those first days after being told I had cancer and beyond.

Ive been reminded that bladder cancer is very very treatable and also that if ultimately I do need an RC in the future life after it can be full,  happy, long and cancer free. 

Vent, rant, ask questions, rail against it all or just chat on here anytime there’s always someone here. 

Welcome to the group, we’re here for you.
Sending you love and wishing you better days ahead. Nikki xx