Diagnosed 4rs ago and have had 10 surgeries to remove tumors with camera checks in between.Surgeon sentn letter for a talk about going BCG chemotherapy's probably over long spell starting one week for 6 weeks the gap of three and then some l after.furtertimes.
Hi thecodger,
Welcome to the group, sound's like you've been through quite a lot over the last 4 years.
Quite a few of us on this forum have had or are going through BCG. I'm currently going through the process myself.
Hope they will get you started soon.
Kindest Regards
Trevor
Hello the codger, I had six BCG Instillations last year followed by Cystoscopy where I was given all clear. I recently - February had a flexible cystoscopy thankfully clear again. I have a further 3 more BCG instillations scheduled for April. Like you I have several surgeries to remove initial tumour and two superficial tumours. My BC anniversary was in February ( 5 years) Keep strong and safe Garviv
I'm pleased both you and thecodger seem to be tolerating BCG well. I'm interested to know if you have had any problems with it?
Hi Jacaranda07, So far I have had 10 in total and I start 3 more tomorrow. I cant say I look forward to it because a) the whole day is about treatment b) for the 6 hours after voiding it does sting a bit and i cant be far from the loo. c) I feel very tired for 2 or 3 days afterwards. Otherwise for me its been easy, and I would take these side effects if it works, which so far it has. If you click on my profile I have detailed the experience so far. Hope this helps . Take care
Much love Angela x
Yes it's not the best way to spend a day. I did find at my clinic that the nurses were very attentive and ran the clinic pretty much on time. I had more stress trying to get parked, in fact there were times I spent more time queuing to park than I did in the clinic itself. Anyway good luck for your treatment, sounds like it's going well. Keep us posted.
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