Bladder can

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Diagnosed 4rs ago and have had 10 surgeries to remove tumors with camera checks in between.Surgeon sentn letter for a talk about going  BCG chemotherapy's probably over long spell starting one week for 6 weeks the gap of three and then some l after.furtertimes.

  • Hi thecodger,

    Welcome to the group, sound's like you've been through quite a lot over the last 4 years.

    Quite a few of us on this forum have had or are going through BCG. I'm currently going through the process myself.

    Hope they will get you started soon.

    Kindest Regards

    Trevor 

  • Hello the codger, I had six BCG Instillations last year followed by Cystoscopy where I was given all clear. I recently - February had a flexible cystoscopy thankfully clear again. I have a further 3 more BCG instillations scheduled for April. Like you I have several surgeries to remove initial tumour and two superficial tumours. My BC anniversary was in February ( 5 years)  Keep strong and safe Garviv 

  • Thank you for the  reply and will see how get on when I can start  the chemo

  • Have said before it is ongoing over 4yrs now.decided to have BCG that was stopped and wasgoing to have further surgery.That was called of twice.Now have a date for the 22nd this month. Will see how things go now

  • Have had 6 weeks BCG and had a camera check .Seems it is going OK and now waiting to start another 3 weeks of BCG

  • That is great news codger and thanks for sharing. I am doing 3 BCG maintenance starting tomorrow, its always good to hear positive news. Take care

    Much love Angela x

  • Hi,Good to hear from you,best wishes with the next round of BCG.Love Jane xx

  • I'm pleased both you and thecodger seem to be tolerating BCG well. I'm interested to know if you have had any problems with it?

  • Hi Jacaranda07, So far I have had 10 in total and I start 3 more tomorrow. I cant say I look forward to it because a) the whole day is about treatment b) for the 6 hours after voiding it does sting a bit and i cant be far from the loo. c) I feel very tired for 2 or 3 days afterwards. Otherwise for me its been easy, and I would take these side effects if it works, which so far it has. If you click on my profile I have detailed the experience so far. Hope this helps . Take care

    Much love Angela x

  • Yes it's not the best way to spend a day. I did find at my clinic that the nurses were very attentive and ran the clinic pretty much on time. I had more stress trying to get parked, in fact there were times I spent more time queuing to park than I did in the clinic itself. Anyway good luck for your treatment, sounds like it's going well. Keep us posted.