Hello, I am new here and don’t really know where to put my question. Here is my story - Last year on October my husband (41yo) has been diagnosed with bladder cancer. His diagnose has been very unique for his age, he got the tumor located outside of bladder in diverticulum. He went through the partial cystectomy, hoping that it will be enough thanks to the diverticulum, even though tumour was micro affecting fat around the diverticulum docs managed to “take it all out”, unfortunately results of biopsy came back as partial low, partial high risk tumour and also Tis.
So now we are standing in front of decision - chemo + radical cystectomy or chemo + radiotherapy.
My first question is if there is someone who went through similar diagnosis?
my second question is - how normal can life be after radical cystectomy with neobladder? We are one year after wedding, very active, I am 34yo, very scared how we will be able to handle all this.
Sorry for long text and thank you all!
Hello Eli Pet and welcome to the group although sorry to hear about your husband. I did not have the diverticulum complication but had a similar decision to make for muscle invasive BC. I went the chemoradiation route but many here have had cystectomies and I am sure will be along to share experiences. Best wishes.
Hi Eli Pet . In my case I was given the choice of bladder removal or radiotherapy with chemo. The surgeon wanted to remove my bladder but my oncologist was an advocate of bladder preservation where possible for muscle invasive BC. I chose the radiotherapy route to keep my bladder. I was 63 at the time. It was my 73rd birthday last week. Without wishing to tempt fate, everything still working normally down there. Best wishes.
Hi Eli Pet . RT is not suitable for everyone. I was T3/G3 but had one large mass which was a good target. Best wishes.
