Bleeding and bladder cancer

I was diagnosed in October 2019. Bowel resection to remove tumour February 2020. All clear until recurrence in October 2022 when I had bleeding. I have had bleeding almost continually since then although chemo radio therapy I. March/April lessened it and chemo in July stopped it for a few weeks. Its back now still on chemo.although it is less than it was initially. 

I think you should contact your CNS or GP. I don't think continual bleeding is usual. My first tumour (huge) bled occasionally but only lightly during the 3 years it remained undiagnosed (despite seeing GP) until eventually I had a big bleed was admitted to hospital via A+E and the cancer was discovered by scan. I had to have a blood transfusion, so constantly losing blood isn't good for you. Hope you can get things sorted soon. Hx 

Hello, in my case other than the initial referral my GP has nothing to go do with my bladder cancer treatment, for nearly the last three years I have been under the care of the hospital consultant urologists & the Macmillan cancer nurses. When my 27 BCG treatments are complete then I will be on 5 year surveillance again under the hospital team. I have had quite a bit of trauma including bleeding. If it’s excessive in intensity or duration get back in touch with your care team soonest.

Hi,I wouldn't wait for your appointment regarding continuous bleeding, my husband had heavy bleeding and was admitted through a&e he was seriously anaemic and needed emergency blood transfusions,they couldn't do a turbt till he'd had 3 bags of blood, I dread to think of the outcome if an emergency Dr hadn't urged him to go to the hospital as he'd been sent home twice with heavy bleeding and thankfully someone was doing their job properly and had him transferred to another hospital which has specialist urology dept. 

I agree the chance of becoming severely anaemic are high if it contnues.I bled heavily post cystectomy and was getting daily blood tests as they thought I would need a transfusion.I just managed to escape one but I did feel excessively weak and exhausted.Better to get checked out than end up as an emergency patient.I had a big haemorrhage a month after a TURBT once and was sent straight to A & E.Love Jane 

I bypassed our useless health centre and firstly saw an out of hours gp one weekend.He was alarmed at how thin and Ill I looked and said I must get in touch with my urologist first thing on Momday.I had been on cancer surveillance for 14 years by then so knew all the urology team.They were very good and got me seen quickly,diagnosed and referred to Bristol for cystectomy.There have been a few excellent gp’s at the health centre in the past but they always leave.