Pain after radiography

Hi 1avender . Sorry to hear you are having pain with your treatment. I had six weeks of chemoradiotherapy and thankfully didn't find it too bad. We know that it can cause radiation cystitis and I was told if this happened to drink lots of water. Good to know infection has been ruled out. Missing a chemo session is common with low blood counts. I hope it subsides soon and all goes well. Best wishes.

Thank you, I have been drinking loads of water but I was advised to stop a few hours before bedtime but I am thinking that if I am getting up all night anyway I may carry on drinking till late and not get dehydrated during the night. I can’t decide.

That sounds miserable for you. Perhaps have a milky drink in the evening instead of water. Water is great to flush through, but milk is better for rehydration. Maybe worth making a note of food & drink related to symptoms in case some are particular triggers. Also see if you can time taking paracetamol to give you more pain relief at night? Best wishes.

Thank you, I will definitely try to time my paracetamol better.

Hi 1avender, I expect because your bladder is sore and sensitive you wake at night even if the amount collected in your bladder is small. Once awake one automatically thinks to go to the toilet. My bladder was very inflamed from BCG treatment and even 2 years after my last dose I am still up and down about 3 or 4 times a might. I think over a lot of time this problem lessens. Good luck with your treatment Hx

Thank you. It is early days for me yet so hopefully it will get better. I was up about six times last night but luckily I am able to get back to sleep.

Hi 1avender , hope things are better-I am probably starting pelvic radiation next month and wondered how things have been since your last post?

BR

Pienmash

I am still struggling with what I have been told is probably radiation cystitis. Apart from that I am doing well but I have constant pain from what I presume is my urethra. Sorry to not be more positive but I presume you want the truth. I am still getting up every hour or so in the night but I have a nap in the afternoon so I am coping. I have a consultation with my consultant on 8th August so I hope to get some answers then.

Thanks for your honesty...Rily has said that It took a few weeks months to return to normal so hopefully will be the same for you. Good luck with your meeting..:)

If your treatment has started I hope it is going well. It’s been a while since your question but I thought that I would let you know that after thinking I was never going to recover I am now much better. Yesterday I came off all my pain medication and I am pain free. I am still having to go to the toilet quite frequently through the night but I can cope with that. I have had my meeting with the consultant and I have a CT scan and a MRI scan scheduled as well as an urology appointment to check that the treatment has been successful. Fingers crossed.