Uti

Hi Phmy,Sorry to hear you are getting infections.Do you have a stoma ? Do you know whether your samples grow the same bacteria each time ? Some of the rarer bacteria are harder to treat.Hopefully someone here will be able to advise.I’ve been infection free since the cystectomy but know that you can get repeat infections after one.Best wishes Jane 

Yes I have a stoma and drink lots of water I'm seeing  my consultant  in 2 weeks will ask if there is anything more I can do as I don't have any symptoms  only my urine has a stong smell 

Many thanks 

Philip

Hi  

I just wondered if you have actually had tests to confirm you have a uti? Everyone I know who has had their bladder removed and has an urostomy,  including me, has complaints about strong smelling urine. But I’ve never personally had a uti. I’ve always assumed that the smell is exacerbated by the fact of how the stoma is made from part of the bowel but I don’t actually know. However, I do know a lot of people with a urostomy and the strong smell is something I hear from everyone.

Sarah xx

Hi Sarah,I’ve always thought that the mucous from the stoma is what makes the urine smell strong.If I’ve cleared the mucous during bag changing then the urine smells fine.Love Jane xx

Yes, a very good point Jane! I notice the smell is much weaker and not noticeable with the mucous cleared out and I’ve drunk lots of water. 

Sarah xx

Same for me.It’s an education living with a stoma (s) xx

I’ve learned stuff I never knew I’d need to know!

Sarah xx