Cancer has changed

Hi Steve-Tap, and welcome back. Guess I wasn't on here when you were before. It's my OH not me that has the bc but he isn't a forum-y person [Asperger's...] whereas I find it very helpful. My OH had 6 BCG and didn't have any big deal off it other than fairly wipe-out fatigue on the afternoon and following day. But he's a lot older than you and already retired so that didn't matter.

Anyway as one of the other regulars says, don't be a stranger, you are not isolated on here. Why not also call the Macmillan helpline for some live emotional support, it's what they're there for.

It's pretty late and have to get up early as on all day grandson duty, being the school hols, so must sign out now. But just want to send you an e-hug to know lots of us out here care, sure more will be along tomorrow. 

Denby

 Denby Thankyou for  your kind words I'm just so apprehensive and feeling so negative for some reason which up to now has not been the case.

Maybe the sleep issue needs to be addressed.

Regards Steve

Hi Steve-Tap, sorry to hear your cancer has become more aggressive, though good to know still not muscle invasive. Hooray for regular screenings, no one loves cystoscopies but they do their job for us. My initial tumor (2017)  also not muscle invasive, may have been more aggressive than yours (Grade 2 T1)  as I was directed to BCG immediately. 6 doses in first 6 weeks, then top ups every three months. In general I didn’t have many side effects, some fatigue on following day, and the occasional flu-like feelings. You may feel you’d like to organize the following day off work. Normally a busy active person, post doses I flopped in front of junk tele and ate cake to reward myself for being brave   I was 70 at the start and now at almost 76 getting 6 monthly screenings, healthy and well. I did have a number of reoccurrences during my treatment but fingers crossed all clear for past two years. Unfortunately bladder cancer is notorious for reoccurrences but hopefully the BCG will do the trick for you to have many healthy years ahead. Keep us posted. H x

Hi Steve I was diagnosed with cis high grade in December 2020 and had bcg treatments about 8 weeks after my turbt .. I have had 15 treatments to date last one last August..I have flexis every 3 months and thankfully all has been good .. in fact I have one today at 1.30 so hoping all will be good .. I try my best to put it all at back of my mind but sometimes it can be hard ..the forum has helped so much to share my worries and for support..I try my best not to worry my family by being down as I know they are worried too .. I am 67 years old and never expected to be dealing with cancer but then I suppose neither did any of us... hopefully you'll be fine with the bcg treatment I didn't find it too hard ..the day of treatment I felt rough burning going to toilet and fatigued going to toilet so often but by following day I seemed much better .. good luck ..keep positive now Steve we are 50s children and seen lots of change in our lives ..we can do this ..take care love Tina 

Good luck Tina! Hx

Thanks for the reply hopefully  I will  not have too many problems  either.

Regards Steve

I'll try my hardest Tina  thankyou.

Steve

Steve,

It's very disappointing to receive such news, but it was always a possibility. You are not back at square one, you've been  through it before and came out through the otherside. The important thing is that it can be treated and hopefully successfully. 

I do know how you feel. I recently had my 6 month check up expecting to be put onto yearly check ups. No trace of any cancer, but they discovered a very small nodule on my right lung (I already have that's been there for years). Alarm bells rang and I initially went into a tail spin. After a discussion with my Nurses, it transpires that such nodules are very common and in 95% cases begnin. The radiologist recorded it as an inflammation, which again, is positive. I now have another scan in three as opposed to six months, but even if I didn't have a history of cancer, this is the normal procedure. Yes, I'm disappointed, but it could have been a he'll of a lot worse.

Have a chat with your Nurse, or if you don't have one, talk to one of the Macmillian Nurses on line. Again, don't be a stranger.

Thank you xx great news all clear xx next flexi 6months x

Hi Hou . Great news. Long may it continue. Best wishes going forward.