New diagnosis

Hi Laney1 and a warm welcome to the group. Firstly, be aware that bladder cancer can be treated successfully. Some difficult questions for you and hubby regarding a holiday. A current backlog in many hospitals, now combined with a doctors strike which could cause delays. Missing or cancelling any appointments could drop your husband further back for his TURBT. If you go away without adequate insurance, then it cold be expensive if something happens. Informing the insurance people would also cause extra expense. Bit of a dilemma for you, so it might be worth while calling the urology department for their advice. I hope all goes well. Best wishes.

1. Hello Laney1, if it was me I’d carry on with my holiday unless you are away for months? You could call the hospital bookings dept and get an idea of how long before TURBT, I have always waited at least 4 weeks after cancer showed up in cystoscopy. The docs don’t generally seem to think a short delay is too worrying. I wouldn’t tell insurance anything because you haven't had a biopsy yet and that is the only definite confirmation of cancer, although what the  consultant advised is most likely to be accurate. Obviously it depends how your husband feels too. I went on holiday during my treatment and it was a great morale boost. Good luck. 

Hi Laney 1 welcome to the group x I had my cystoscopy on Dec 14th and my turbt Feb 1st so roughly 7 weeks .. I had the mri scan about a month after cystoscopy...I was really worried about something showing up on the scan but when I was phoning for results couldn't get an answer ..when I went in for turbt the urologist told me all was OK with my scan Phew that made me feel better .. if I were in your shoes I would go on your holiday and try your best to enjoy and not worry too much about things ..it really won't change anything only spoil your holiday and your life if you let it ..I know it's  hard and that little worrying niggle will try to pull you down but try your best to take one day at a time .. best of luck and enjoy your holiday xx by the way where are you off to ?? xx

Thanks we’re going on a cruise to USA Then pick up another ship and cruise back. We are so looking forward to it and now I’m getting the blame because I made him go to doctors. 

Thank you what you say makes sense but insurance companies try every way to get out of it. Like I said he is desperate to go and isn’t sick still working full time 

I first had blood in my urine three years before eventually having a big bleed and things becoming an emergency. My GP neglected to send me to Urology after I reported the problem. It is pretty common for women to experience delayed referrals, anyway I got treatment and here I am happy and healthy 5 years later. My point being things generally don’t quickly become the sort of emergency requiring an insurance claim. Your husband should be thanking you for encouraging his referral, while not an emergency nonetheless better to get any dodgy growths removed as soon as system allows. Why not phone Urology tell them about your hols and see if they can organize your TURBT for immediately you return, I’ve had 5 TURBTs and found the booking team really helpful and supportive. x

This is a message for Jane.

Sent you a personal message but it has been sent back!

Just wanted to let you know that I have just arrived home after having my cystectomy.

All went well and I’m msking really hood progress.

Just for those who don’t know me, I had 15 successful rounds of BCG but when I then went onto 6 monthly intervals between treatments  another aggresive tumour appeared which was duly removed.

Biopsy showed concern and a bladder removal was recommended.

Quite a shock

But I arrived home from hospital yesterday and am managing really well. It’s not the end of the world.

I met several people who have undergone this procedure which I found really helpful cos they all looked so good.

Good luck to you all but don't be dismayed if surgery is necessary.

Happy Easter to you all.

Kiko  

Hi Kiko, thanks for copying us into your message. It is so encouraging to hear that you are doing well. Sending very best wishes for a speedy recovery H x

Thank you for the encouraging update I think we all worry and stress over being told we will need RC .. so glad you are doing well hope this keeps on xx take care love Tina x

1. How lovely that holiday sounds  don't put your life on hold waiting for appointments and operations go and enjoy yourselves xx I agree with herothedog give urology dept a ring and explain dates you are away I'm sure they'll be helpful... I also had just streak of blood and by the time I had date for cystoscopy I really wasn't going to bother going as there was nothing wrong with me .. the urologist showed me the little growth on the screen I was so shocked and numb ... this was Dec 2020 and I try my best to keep positive about it all and as I say and live my life enjoyably xx covid prevented us going on any holidays at that time but I have been on a few since we can travel again ..I am 67 years old xx take care and get packing for your holiday you'll need a few fancy dresses to take with you so that you can have a few special photos taken on board ship xx love Tina xx