Hello all
Not been about much recently as I find it easier to cope if I try to forget about bc as much as possible so apologies but I am back as my anxiety is increasing again recently and people here are so sensible and knowledgeable that I always feel better with the kind replies I have had in the past.
I was diagnosed in June last year and felt fortunate, post TURBT, to be confirmed pTa G1 Low risk. I was also clear at my first 3 mth check. I have just had my appointment through for my next flexible cystoscopy in late June, 1 year from TURBT and 9 mths from the first post TURBT check. I don’t know why, perhaps getting the date for the next check made it all seem real again, but since receiving that appointment, my anxiety has been slowly increasing. I worry it has already come back (I get this weird thing where sometimes before going to bed I want to pee again and again, every minute or so but there is very little voided. It only happens occasionally and only in the evening). I don’t have other symptoms and dont know whether I am just being a bit neurotic.
I didnt have symptoms last year and was only diagnosed by chance due to a scan I had for other investigations so I think I worry a lot that as I didnt know it was there last time, how will I know if it returns. Don’t know if this makes sense.
Hope you are all doing ok.
Blue.
Hi Blue. The way you are feeling is normal and I think many of us know the anxiety. I am several years down the line and still get the jitters before each check. Once you feel like a pee, your mind stays on it and just thinking about it makes you feel as though you want to go. Anything unusual makes us think twice. Best wishes.
Thanks rily. I was worried that the frequent urge to go was a symptom of its return but that is a good point. Best, Blue
Perfectly normal reaction. I had a radical cystectomy just under 5 years ago and my progress has been good. Two visits a year, but despite this I still get anxiety at check up time. Not as bad as it used to be, but I still get it despite the odds in my favour.
Try filling your time with activities to take your mind off things and maybe arrange to do something after your check up, so you have something else to concentrate on the day. The likelihood is that things will be ok, and overtime the anxiety will decrease, but it never goes completely. Again, perfectly normal and just keep coming on here to talk every time it get a bi5 heavy.
Hi Sparky03
Thank you for this. May I ask what the strips are called/who makes them and where you get them from?
many thanks.
Blue
Hi Blue.
Siemens Multistix. I'm sure there are plenty of others. I got mine online at the height of the pandemic as I was not going out; I would think that pharmacies will have them.
spareky03
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