Short recap.
I had a cystocopy on Monday 12th & told that there was a tumour in my bladder. Since then, on top of the worry & tears, I have been fighting with Universal credit & tryign to figure out ways to get to & from the hospital.
I visited my GP yesterday after discussing with my Urology Nurse about pain in & around my bladder & groin area. My GP took some bloods & messaged the Urology consultant.He also prescribed Ibuprofen for me. (I have a reaction of paracetomol & am allergic to codeine).
The result of the contact with the consultant is that I am having a CT scan tomorrow & am "1st in line" for a TURBT.
The ibuprofen has been interesting. It has completely removed the pain from my testes & substantially reduced my pain from the bladder/groin area. Noticably, it has reduced the frequency of urination. Meaning getting up 3 times in the night, instead of 4 or 5 times & not having to urinate during our 40 minute walk every evening.
Is it usualy to be prescribed pain medications & is this the normal effect?
Hi Coojee. Various aches and pains leading up to a TURBT are not uncommon. I had severe lower back pain waiting for my op. Post op, things were a lot better. CT scans are standard procedure. It gives them a better picture of what they are dealing with and also checks there is nothing else going on elsewhere. Once you get a firm date for your op, it takes away a lot of anxiety. Best wishes.
Hi Coojee,It is interesting how medications affect people so differently.After my cystectomy I was given morphine but even with anti sickness pills I couldn’t tolerate it.I managed on Paracetamol but I think my pain threshold is fairly high.Before cancer I had bladder ulcers and was on Cimetidine.That worked brilliantly on the bladder but played havoc with my liver function so it was stopped.I hope your scan goes well tomorrow.Best wishes love Jane
Hi Jane and Coojee, I refer to my earlier post, seven percent of everybody have a genetic difference that means they do not metabolize [process] a quarter of all meds including some very popular ones like opiate painkillers and Fluoxetine [prozac] "normally" Some other people process them extra fast which also has downsides and can be dangerous. To me all this is one of the biggest unmentioned scandals in the NHS; they do not even do the genetic test here and we are waiting to hear back from the American lab. They hope to offer private testing for the UK later this year. As it only requires a cheek swab it is pretty user friendly and postable. Meantime people are being told 'it is all in their head', have procedures and can feel everything, etc etc while untold millions of £s are spent on NHS drugs that don't work on the patients.
Denby
Hi Coojee
Glad the Ibuprofen worked, that pain is brutal! Ibuprofen works by reducing hormones that cause pain and swelling in the body. I'm allergic to it unfortunately. I had Morphine like Winkers 1st time. Now I have Codeine which I'm not quite sure about but it knocks me out & gives me at least some relief, & paracetamol which doesn't really do much for me at all after a TURBT. All the best to you!
Thank you. I had my CT Scan yesterday. It was a scarey time for me sitting in a chair waiting on my own with one of those horrible things in my vein. It hurt when they started pumping stuff into my vein, but I got used to it. The machine itself was ok, I found it hard to understand when they spoke to me, but just about managed to do things correctly. Afterwards, trying to get my clothes back on, I got the shakes, but it didn't last long. It was good to get out of the hospital & see my wife sitting in the car waiting for me. Now it seems I have to wait up to 10 days to get the results.
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