Bladder Removal Followed by Chemotherapy

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Several weeks ago I wrote on this forum about my experiences following the first cycle of post-op chemo. Everything was fine without side effects (except a little vomiting) and I carried on an active life style. I have now completed three chemo cycles ( the third, hopefully, will be the last one subject to review) and I have to say the fatigue and tiredness kicked in, possibly made worse by the necessity to self-inject Accofil to boost immunity. Despite that I have been able to keep active: a trip to the coast and some easy cycling (20km), walking, and even a short kajyak trip (4-5km). On Saturday, after my last bag of poison on  Friday, I did our local 5km Parkrun - walked the course in just under 45 minutes (short course?). Other side effects, apart from the fatigue, have been phlebitis ( my veins react badly to canulas), and a bio-chemical imbalance in the liver. Other than the tiredness I feel quite well. I am male and 74. My stoma and bag work well despite occasional leakage which is a stoma recipients greatest fear.

Your experiences may be quite different to mine. What I would say is this: you can't fight cancer. It is random and is caused by many variable and multiple factors. Some fit and healthy people get it, and others, who don't exercise and eat all the wrong food, are never touched by it and live on well into their 90's. It either kills you or it doesn't. What you can do is to try and live a normal life. Carry on doing all the things you used to do as if it never happened. Staying in bed all day is not going to do you any favours. Good luck and good health.

  • Very wise words. I dislike the fight & battle terms so often applied to health issues & cancer in particular. Like many difficulties that crop up in life, we just have to get on & deal with them as best we can. Some of us have personalities better able to cope than others, so we should never underestimate the effect that even a small trouble might have on someone. Best wishes.

  • Well done Veteranrunner, I hope you can now enjoy your active life without further treatment. Your words are inspiring and I absolutely agree about getting on with life. Since my diagnosis I treasure simple things and grab each lovely day and it has without doubt improved the quality of my life. Sending love  Hx