Well as you all know dad was diagnosed with MIBC , and did a ct scan to see if it has spread , thank the lord it hasn’t so radiotherapy for 20 days , but I’m worried I read a letter he received today stating his right kidney has Hydronephrosis , and inflammation (slight ) of the gall bladder , this last week he’s had high blood sugars and go put him on amoxicillin, only just started working , so we have gone from high sugar
evels to pretty much the opposite but I suppose in a good place , problem is I feel responsible for him I know he’s my dad but he can hardly see partially blind he complains of neck ache , back achend I know he’s stressed about the Radiotherapy, and so am I , I suppose my worry is side effects will he cope with it daily for 20 days , I just feel so alone in my fight to keep him strong , I’m tid and don’t say any thing to any one I suffer in silence that my own health is suffering , I try do my best I’m at work all day my escape from my worries I’m normal me at work then the anxiety sets when I leave , and the carer in me commences duties I know it’s not for ever , just feel so alone in dealing with this although people are around me but I don’t feel like they understand how hard iis caring for some , but I wouldn’t change it . I just wanted to rant and I have done it now . Thank you for reading
Woah there! It us very normal to feel responsible for your Dad and we all feel that way, especially if it's a close relationship. Before I was diagnosed, I spent some time caring for my Dad, who had an alcoholic induced epilepsy and memory loss. During this period, there were times when I was physically and mentally exhausted. The toll at times is high and it is important that ypu take time out for yourself, respite is very important.
In regards to the side effects, they vary from person to person, but he wouldn't have the treatment if the Medical Team didn't think it was worthwhile. However, it is very important that you take care of yourself. Use this site ad infinitum there is always someone who can help. Call the help line, but don't sit back and think you are alone, you are not! I can't wave a magic wand, but the early days are often the worse and are likely to get better.
Thank you for your kind words
