Muscle invasive bladder cancer

Hi Eliana33,
Sorry you and your dad are going through this extremely worrying time. Everyone on this forum will feel for you both as we do understand what you are going through.
Bladder cancer can often be an aggressive cancer so it may not have been picked up last summer as it could well have started after that. Wether it was or wasn’t there in July doesn’t really matter today. You just need to work with the current and try to be as supportive of your dad as you can be.

I have been through bladder removal as have others on this forum. And other members of our group are supporting loved ones like you are, so you are not alone. Between us we will have seen most scenarios so do reach out with any questions.

for now, be there for your dad and vent and scream at us.

cheers,
Chasam

Hi Eliana33, sorry you are coping with such frightening news. As you say there are many options for treatment which means your dad and the medics can choose the right one for him. Many folk on this site have chosen bladder removal and are still around enjoying healthy lives. Others opt for chemo and radiotherapy and are also free of disease and well.. Since my diagnosis in 2017 ( not muscle invasive but high grade) I have learned to take things one day at a time, which has reduced my anxiety. Thinking of you and your family and hoping today is a better day. xxx

Thank you for your kind words , means a lot I literally woke up this morning with a wet face and realised I was crying if it hasn’t spread then we have hope. I’m praying he’s 75 with diabetes and on blood thinners I just hope and pray he’s fit enough for treatment

Thank you for your kind words and support , never did I ever think I would be posting on a Macmillan site , I have posted on anxiety websites , sands for neonatal loss but this one I was scared to ,fter posting yesterday and reading your replies I have a glimmer of hope today and for this I thank you all for the support I have been shown . God bless you

Hi Eliana33,What a worrying time for you and your dad but we are all here to support you both.Once your dad has received his scan results the situation will become clearer regarding treatment.We understand the horrible anxious time waiting for tests and results.I hope you will find some advice,support and friendship here.Love and best wishes Jane xx

Thank you Jane , waiting now for ct scan to see if it has spread I pray it hasn’t and treatment will help  thank you for being there x

Hi . Obviously a worrying time for your dad and your family, but it is early days for dad. The CT scan is standard, mainly precautionary to rule anything else out, and it also gives them a better picture of what they are dealing with. 2-3 weeks will not make much difference in the great scheme of things. Waiting is something we have to deal with, but never get used to it. As said earlier, once dad gets to know the treatment plan, we will be able to offer more detailed help. I was muscle invasive and still here 8 years on after radiotherapy. Best wishes

My cancer was in the muscle in 2017 and I had the bladder removed. In addition, they discovered incidental prostate cancer. Since that date I've had scans every six months and have been clear.  In short, it's not a death sentence, although it is very frightening to begin with and coming to terms with it can be difficult.

In addition, along with radiotherapy there are a lot of very effective treatments for bladder cancer, which are less intrusive than surgery.