Hello all.
it's been a while, so thought I'd check in with a hello, and a little update really.
It's not been good this past year, Covid aside - as I got hit by Radiation Cystitis really bad. Bladder is calcifying, has reduced in size to such an extent that I can only hold about 30ml now.
Some of you may remember a while back, when I posted that I'd bitten the bullet and gone for an RC - but, this time because of Covid, there's been delay after delay, after delay. I eventually spoke to my Urologist last week, who has now referred me to University College Hospital London, and the amazing team up there (robotic surgery -get in!!).
I went for my pre-CT bloods today, and have a stoma nurse coming round next Monday to see me.
From end of August last year, has been unbearable. The constant weeing, the pain in general, the pain in passing baked bean sized chunks of my bladder out, being housebound and just rotting away until now.
I cannot even begin to describe the elation, knowing that I will soon be able to do all the things I used to be able to do (well, with the exception of one, but I've got my head around that now), go out for a walk longer than 10 minutes, just jump in my car with my camera and just drive somewhere, or most importantly - go outside with my wife and little 'un.
I thought at the beginning that a bag would be debilitating, hard to live with, and a crap quality of life which is one of the reasons I went down the radiotherapy route - and it's quite funny really, that now, I am having a RC so I no longer have any of the above - the debilitation, the crap quality of life, and it be hard to live with - because if the past 7-8 months have been anything to go by - this will be a doddle.
Hello . Nice to hear from you, but sorry to hear the RT didn't go as well as hoped and you've been suffering for months. Good to know you have your RC arranged. Spring in the air and you will soon be out and about . Hope all goes well for you. keep us posted. Best wishes.
