Gross hematuria at end of life care

Hello . Really sorry to hear dad is still having problems with his catheter, but good to know he is more comfortable. If it gets really blocked, it may be an idea to call 111 for advice. They may arrange for someone to see him. Best wishes.

Hospice / Macmillan nurses and district nurses are his team now ..

he at home till the end now both on 24 hour call outs and I can’t complain as have come  as soon as I phone them .. it’s just a very hard thing to see knowing he slowly going into shock .. thank you for replying Rily hope your new year is a good one  

Hi . Good to know you have good backup support, but I know how hard it is looking after someone at home. Here if you just want to talk. Best wishes.

My heart goes out to you and your family Sending love and  prayers x

Don’t wish to go against what anyone has suggested but 111 are invariably useless unfortunately. You can’t afford to be given the wrong advise by them, this is far too serious. MacMillan and district nurses are absolutely fantastic. Discuss all your worries and fears with them. MacMillan nurses also offer counselling. All the best. 

*Advice! 

Thinking of you Tinks5, xxx

Thinking of you and your Dad Tinks5, We’re all here for you.

Luce x

I do try to discuss  with them but I’m also careful of what I say esp in front of my parents .. my mum is just getting over 3 rd heart attack from end Oct as my dad started getting unwell both are in late 80’s  my main contact is a Macmillan nurse at the hospice .. and she does phone me personally to check on me but I don’t want to pester them while I’m coping if you know what I mean  I hoped to find some one on here who as gone threw this  as even though I search I can’t find any chat on this .

thankfully this as affected my dads memory and he doesn’t know how unwell he is which is a blessing x 

Hi Tinks, I went through similar with my dad many years ago, he had lung cancer ... too.  Although I wasn't the main carer as my mom was still alive, & quite young & healthy at the time. However, I spent a fair bit of time with my dad & it's just so heartbreaking.  Dad never asked & we never told him what was wrong with him, although I suspect that he may have known.  We shed many tears & had much laughter during that time.  I was there & there was nothing that I could've done differently, the same as you are for both of your parents.  Don't be afraid to seek support from the services that are available to you.  We're all here if you need us xxx