Complete incontinence after TURBT

Don't know what it's like for ladies, but Mr. D is having to wear Tena pants now in hospital immobile with right leg problems, and not waking up to wee due to necessary heavy painkillers. So if Mum's on pain meds that could be similar. I certainly agree his cancer dept don't seem to offer much sympathy or practical advice to him on incontinence.

Best wishes, Denby

oh bless him Denby - thanks for replying - yes that's what she's wearing too - not that it really helps much at night. she's probably going to have to stay on antibiotics now as she just keeps getting repeated UTI's, maybe that's it and yes she's been having some Tramadol and been given some oramorph that she only occasionally has, so maybe it all is part of it! 

Anyway, best wishes to Mr D and you Denby, hope he sees some improvement soon - thank you x  

Hi Puglover, cant help ref incontinence but just wanted to say how marvellous it is that your mum has soldiered on so bravely and still enjoying life with the family she loves. I was thrilled when my BCG dates ran into 2021 too! Sending love x

Oh thank you Hero!! Yes, ultimately this incontinence is really just a big old fly in the ointment! Other than that, she really has done well and that's wonderful you're doing so well too! Lots of reasons to look forward and be positive - take good care x

Your mum is doing really well with all the treatment she is having to deal with but I would have thought urology would be able to sort out her incontinence, it must be very waring for her. Hope you manage to get something sorted for her or others can offer some advice.

Best wishes Luce x

I can

Sorry, blip there due to revamped website (sigh).

I can sympathise with the incontinence having experienced some of that post RC. Getting decent pads is important - has anyone sorted out a suitable supply? District Nurse gave me contact details to order via NHS, huge incontinence pads that fitted well so no leaks (unless they got full). Alas, I think it is countrywide that they will only supply 4 per 24 hours, which is not usually sufficient. I bought extra online from an incontinence supplier - much better than those available in supermarkets/High Street chemists & cheaper too.

I bought some from AgeUK; they're ok but not brilliant. What's the name of the online incontinence supplier?

It's AgeUk I use now - they do have quite a good range. Previously I have used a firm called Gompels for more absorbent ones. Different brands fit differently, sometimes you need to try one or two types to find the ideal. Go for maximum capacity - like adult nappies. Nit elegant, but functional.

PS I don't use AgeUk own brand. My mega ones were ID expert, but they've changed their design since. Look carefully at specs (if available) to see shape, dimensions & amount absorbed - which is never as much as they say if it all goes in one place quickly. Depends is a popular brand, but I've not used those. I like Attends & Abri-san. If you google incontinence supplies you will find some specialist suppliers who stock various brands, styles & absorbances.

I just have light leakage from neobladder at night, but it is important at night to have close fitting pads, which might mean using different/specialist pants to hold the pad in a good position. Otherwise when lying down, gravity can take over, or path of least resistance, which means fluid escapes the pad.