Hi,I can hardly believe that this time last year I had just been told I had bladder cancer.So much has happened and the world feels very different in the pandemic.I would like to thank everyone here who guided me through the cystectomy with reassurance and helpful advice.I’m extremely grateful especially as I had no help from the health centre or the specialist nurse.I am so glad I joined this community,it’s kept me going through the stressful times.Love to you all Jane xx
Hi Jane. I know what you mean by time passing us by. The last three months have been exceptionally strange. Good to see you have come out the other side, and great that you have used your experience to help others along the way. Wishing you well going forward. Best wishes.
I've just approaching the fourth anniversary of my diagnosis and it seems so long ago now that having a stoma is just part of life. This forum is a brilliant source of information, compassion, comfort and sometimes wonderfully dark humour. Despite being a bit of an old hand, I learn something new each week, if nothing else, the human capacity for kindness towards complete strangers.
Now I must go and fix myself an industrial strength G&T to toast your health!
CB
I may appear to be listening but in my head I'm all at sea.
I consider myself lucky to have had no problems adjusting to life with a stoma.I think the bleakest time was being so sick with the paralytic ileus after surgery.After the n.g tube was fitted I used to totter along the ward corridor.The nurses would pass and offer words of encouragement or tell me I was looking less green than the day before ! X
Hi Jane,
It’s good that you are in a better place than 12 months ago and have recovered so well from your operation. It can’t have been easy for you, particularly these last few months when you have been on your own and the worry about your mum ( hope she has settled with you now).
It’s just 3 years since I was diagnosed and I have been clear now for nearly a year. I’m under no illusions that it could reoccur again but as you have said this community is brilliant at lifting us up when we are down and providing reassurance and good advice.
Like you I am glad I found this forum.
Best wishes to all.
Luce xx
Hi Jane well done on your 1 year you seem to have got on top of things now like you say so much has happened and changed in that year and I can definitely relate to you with the sickness and nasel tube after op .i would like to thank you for the information and help you gave to me with my op . I hope you are managing ok with your mum being with you now and she is well . I wish you all the best going forward and good health take care love Liz xx
Thank you all so much.Mum appears more settled but has deteriorated mentally and physically since the lockdown.I have a phone appt with her gp next Friday to discuss my concerns.Love to you all.Jane xx
Feels like only yesterday when you were weighing up your options ands planning for how you would manage after your op! You've done so well managing everything Jane and I'm glad you now feel healthy and stronger. Glad too that your mum is safely home with you. As I realised caring for my dad (and now getting older myself) our later years bring their own challenges but of course we are lucky to live long enough to discover this! I feel very fortunate to live in a country where medical care is provided free to all. Happy birthday NHS and happy anniversary Jane. xxx
Hi H,The time has gone quickly apart from the lockdown period.I’m venturing to hospital next week to the breast clinic.It will only be my second trip out since March.I agree with you about the NHS.It has its problems but we are lucky to have it.love Jane xx
Hi Jenny,How is Ray ? He has been through so much lately and it must be so tough for you as well.I am doing my best for mum though it is hard work.At least she is eating now.Love to you both.Jane xx
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