No visiting

FormerMember
FormerMember
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Unfortunately Ray isn't doing so well. I keep thinking back to his RC when he was walking up and down the ward 3 times a day on the 3rd day and fit to leave hospital on day 7 . This time he has shuffled from bed to chair only on day5. He is suffering from paralytic how is which many of you will know about and is vomiting so they've put him back on a drip and nil by mouth. The dreaded ng tube is ready if they need it. He's really suffering with the new stoma 2 nephrostomy tubes and the hernia repair and I can't get anywhere near. His mood is not too great either. I knew it would be hard but comfort on the phone is just not enough. Sorry for the self pity in my voice I'm finding it very hard to cope. Thanks for listening

  • Hi Jenny. It is understandable how you are feeling. Not being able to be with Ray must be really hard, and it must be hard for him not having any visitors. Still early days yet and although he is having a tough time of it, he is in the best place and will be very well looked after. Best wishes.

    Best wishes to All,   rily.

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  • Oh Jenny,How rotten for you both.The paralytic Ileus is a horrible complication,I felt better when the nasal gastric tube was put down.I hope Ray starts to pick up soon.Love and best wishes to you both.Jane xx

  • Sorry to hear this JennyJJ. Almost harder for the one left helpless at home than the patient. x Hope things improve for Ray soon. x

  • FormerMember
    FormerMember

    You’re both having a tough time Jenny, made worse by not being able to visit. It’s not self pity you’re feeling, it’s worry which is very understandable.Hopefully things will start improving and he will  be back home very soon.

    Luce x

  • Hello Jenny JJ,

    My thoughts and prayers are with you and Ray during these difficult times.

    Garviv

    Garviv

  • Hello Jenny

    Ray's experience is all too familiar to me and I really feel for both of you. These set backs can be very disheartening - for the patient, you just want it to end. For the carer, you feel utterly helpless and frustrated (said Mrs CB when I was being treated for sepsis with three drains, a nephrostomy, a nasal tube and being fed and medicated via a PICC line never mind a new stoma). 

    After two weeks of this, I reached the point where I'd stopped caring about the outcome so long as the discomfort ended. Then I reminded myself of a line from my favourite film and told my self to 'Get busy living' and I recovered.

    Looking back, it was my lowest point in the whole experience and now it's over three years and the new normal life continues. I wish you both all the best for Ray's recovery which will take some time yet.

    If you need to chat to someone about this situation, Macmillan Buddies can help or the folks at Reading Bladder Cancer Support Group Trust. Or just come here to sound off, it's what we are all here for, to help one another through the tough times of diagnosis and treatment.

    CB

    I may appear to be listening but in my head I'm all at sea. 

  • Hi Jenny,How are things now ? Love Jane xx

  • FormerMember
    FormerMember in reply to winkers60

    Hi Jane, today has been a better day I think. He has been walking around but the bowel is still not working properly. He has an NG but they haven't to empty it for 24 hours.  He is managing to drink the disgu sting protein drinks and is feeling stronger. It was scary over the weekend as his heart started playing up but they sorted it. I know there will still be bad days but hope the worst is over. The Consultant keeps telling him that he had a triple whammy, severe infection, hernia repair and a new i leal conduit. No wonder the bowel is sulking. Hope you remain well love Jenny

  • Great news Jenny. Hopefully upwards and onwards now. xxx

  • Hi Jenny,I do hope Ray continues to improve,he has been through so much.I am very tired,back caring for my mother but it is exhausting.I’m ok apart from that.Love and best wishes.Jane xx