After a TURBT and 6 week Mitomycin course last May-July, they took more biopsies in March. The unofficial result is that its still there. My consultant told me that if something was found then I'd get BCG. I haven't had the consultant appointment yet to get the full details but it looks like I'll be getting BCG.
I know that MTX and live vaccine don't mix, needs 6 months off it to get yellow fever for example. Intravesical probably doesn't have such a high risk but there obviously is one.
Anybody been in the same situation of needing BCG but being on Methotrexate or other immunosuppression drugs?
Do I maybe negotiate with my dermatologist to come off it so that when Covid allows, the treatment can start?
Hi Mugwump. Sorry to hear the Mitomycin was not effective. Hopefully the BCG will do a better job. As regards the MTX, and the reaction with BCG, then I think you need to be guided by the medics, making sure they all know about the medications. While waiting for answers, it might be a good idea to post your concerns in the Ask a Nurse section where you should get professional advice. Best wishes.
Thank you. I have posted in there now. I realise Covid has changed things but I was supposed to get the results in 2 weeks but 6 weeks down the line I haven't heard a thing.
I realise covid may delay treatment but knowing the results and what is planned would be a real help psychologically rather than not knowing
Even though they were aware of my Methotrexate they didn't think to involve Dermatology in the MDT decision making.
So we have the situation where they have decided to give me BCG but now need to talk to Dermatology to find out if there is an alternate medication that I can be put on.
I hate to tell them but every medication at that level has a severe interaction with BCG and topical steriods won't touch it.
But we will just have to wait and see what they come up with
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