Sorry if this has already been asked but I’ve had a search around and can’t find any information and I’m giving myself awful anxiety.
My PDD and immunotherapy has been cancelled and though I do understand the reasons I can’t pretend I’m not worried. I have grade 3, T1 cancer of the bladder, I’ve had 2 TURBT ops and I was on week 9 of my bcg.
I just want to know if anyone else has had everything stopped indefinitely as well, I know I won’t be the only one bit not knowing even a vague idea of when it might start again is making me really struggle.
I don’t even know who I can ask for any advice as the nurses who had been doing my bcg aren’t in the dept any more and the consultants secretary number just goes to answer phone.
Hi . Unfortunately, you are not alone in this. BCG as well as many other treatments have been put on hold, and is a worry for many people. As a positive, I would suggest that by having the 2 TURBTs as well as the BCG so far would put you in a favourable position. Some people have been told treatment would be suspended for 3 months, but the way things are going, we really don't know. The reason is of course is that treatment may put you at a greater risk and many of the staff have been moved on to CV19 duty. Best wishes.
